Importance of Respecting Individual Differences in the Context of Relationships- Dr. Mona Delahooke
Resumo
TLDRDr. Mona Delahooke, a clinical child psychologist, shares insights on supporting children with autism by focusing on individual differences and behaviors as adaptive signals of sensory processing rather than issues to correct. Through her book "Beyond Behaviors," she emphasizes a compassionate, neuroscience-informed approach, contrasting with traditional compliance-based methods. Delahooke advocates understanding children's behaviors as crucial to their psychological state and stresses creating a safe environment to foster development. She critiques conventional behavior-focused treatments for autism, promoting the adoption of a developmental lens that honors each child's unique sensory needs and emotional regulation challenges. The discussion also highlights the importance of listening to autistic individuals and incorporating their experiences into educational practices to ensure compassionate and supportive interventions.
Conclusรตes
- ๐ Understanding behaviors in autism requires a compassionate, non-compliance-focused approach.
- ๐ The 'Developmental Iceberg' metaphor shows behaviors as signals with hidden causes.
- ๐ Focus on understanding sensory processing needs rather than surface behaviors.
- ๐ฌ Engage autistic individuals' perspectives for insights into their experiences.
- ๐ค Safe and supportive relationships are vital for child development.
- ๐ Misunderstandings can harm autistic individuals' emotional well-being.
- ๐ง Neuroscience and the Polyvagal Theory inform compassionate autism support strategies.
- ๐ Behavioral signals are adaptive, not just problems to fix.
- ๐ Developmental approaches emphasize respecting each child's unique experiences.
- ๐ Dr. Delahooke's book "Beyond Behaviors" is a resource for new perspectives in child psychology.
Linha do tempo
- 00:00:00 - 00:05:00
The video begins with music playing.
- 00:05:00 - 00:10:00
The music continues to play without interruption.
- 00:10:00 - 00:15:00
The music plays once more with a subtle change in tone.
- 00:15:00 - 00:20:00
Jenn Shonger introduces herself as a representative of the New Jersey Autism Center, highlighting the involvement of Dr. Mona Della Hook in today's discussion. Dr. Hook is a clinical child psychologist with extensive experience, and the discussion will focus on respectful behavior management in autism.
- 00:20:00 - 00:25:00
Discussion about how human behaviors are influenced by physiological states begins, emphasizing the connection between the brain and the body, especially concerning individuals on the autism spectrum. Dr. Della Hook discusses her professional background and approach to developmental differences.
- 00:25:00 - 00:30:00
The video delves into understanding children's behaviors beyond surface-level observations, explaining the 'developmental iceberg' and emphasizing the importance of looking at underlying causes for behaviors.
- 00:30:00 - 00:35:00
Dr. Della Hook argues for shifting the focus from changing behaviors to understanding individual differences in sensory processing and emotional regulation, particularly for children with autism.
- 00:35:00 - 00:40:00
The concept of stress responses is introduced, differentiating between top-down (intentional) and bottom-up (instinctual) behaviors. Strategies for understanding and addressing bottom-up behaviors are discussed, focusing on what they reveal about the child's internal state.
- 00:40:00 - 00:45:00
A case study highlights the importance of recognizing when compliance demands escalate stress responses, illustrating through an example with Max. The importance of establishing a sense of safety in therapeutic settings is stressed.
- 00:45:00 - 00:50:00
Discussion on the outdated behavior-focus model by educators and healthcare providers, advocating for seeing behaviors as responses to sensory experiences rather than mere outcomes needing correction.
- 00:50:00 - 00:55:00
Further exploration of behaviors and their meanings, proposing questions to guide understanding like constitutional needs behind behaviors, shifting away from labeling behaviors as compliant/non-compliant.
- 00:55:00 - 01:00:00
The necessity for enhancing communication methods for non-verbal autistic children is emphasized. The importance of having a consistent support team that respects and understands the child's communication style is highlighted.
- 01:00:00 - 01:05:00
Different options for understanding autism are presented, focusing on resources that prioritize the whole child over behavior modification. Advocacy for systems and professionals to evolve their perception of autism is discussed.
- 01:05:00 - 01:10:00
Discussion on neurodiversity: Autism should be respected as part of human diversity. The emphasis is on altering educational and healthcare perceptions to reduce anxiety among autistic individuals.
- 01:10:00 - 01:15:00
Discussion around maintaining calm, consistent environments to support autistic children during distress. The importance of extending the window of tolerance through positive, supportive relationships is highlighted.
- 01:15:00 - 01:20:00
Parents and teachers are encouraged to embrace their roles as co-regulators for children, maintaining a supportive atmosphere and focusing on relationship building as a foundational approach to behavior.
- 01:20:00 - 01:27:00
The dialogue concludes with a Q&A session addressing barriers to adopting developmental approaches, the importance of autistic self-advocacy, and understanding and supporting children's natural behaviors. The session closes on a hopeful note about changing paradigms to support autistic children.
Mapa mental
Perguntas frequentes
Who is Dr. Mona Delahooke?
Dr. Mona Delahooke is a clinical child psychologist focused on supporting families and children with developmental and emotional differences.
What is the main topic of Dr. Delahookeโs presentation?
The presentation focuses on redefining support for children with autism by understanding behaviors through a compassionate lens, considering them as signals of sensory processing differences rather than issues to fix.
What is the book 'Beyond Behaviors' about?
'Beyond Behaviors' explores using neuroscience and compassion to understand and address children's behavioral challenges, emphasizing a developmental approach.
What does Dr. Delahooke think about traditional behavioral approaches in autism?
Dr. Delahooke critiques traditional behavioral methods such as compliance-based techniques, arguing for understanding behaviors as adaptive responses rather than problems to be fixed.
What is the 'Developmental Iceberg'?
The 'Developmental Iceberg' is a metaphor used to describe visible behaviors as just the tip, with the underlying causes hidden beneath, requiring a deeper understanding of individual sensory and physiological differences.
How can misunderstandings affect autistic individuals?
Misunderstandings and focusing solely on behaviors can harm emotional well-being, emphasizing the need for compassionate understanding of each individualโs internal sensory experiences.
Why is safety important in Dr. Delahooke's approach?
Feeling safe is foundational for development and learning. The approach emphasizes creating a sense of safety in children through compassionate relationships rather than focusing on surface behaviors.
What are 'top-down' and 'bottom-up' behaviors?
'Top-down' behaviors are planned and deliberate, while 'bottom-up' behaviors are instinctual reactions to sensory input, often misunderstood as 'misbehavior' in children with autism.
What should be the focus instead of behavior change?
The focus should be on creating safe, supportive environments and relationships, understanding underlying sensory processing needs, and respecting natural behaviors rather than forcing compliance.
Is there ongoing research supporting Dr. Delahooke's views?
Yes, there is ongoing research that supports developmental approaches over traditional behavioral methods, emphasizing understanding and accommodating individual sensory needs.
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Rebuild Yourself: Let Your Focus Be On You Everyday (Audiobook)
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- 00:13:04do
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- 00:15:06all right i think we are live um welcome
- 00:15:09everyone
- 00:15:10i'm so happy to be here today i'm jenn
- 00:15:14shonger from the new jersey autism
- 00:15:15center of excellence which is funded in
- 00:15:17part by the new jersey governor's
- 00:15:18council for the medical research and
- 00:15:20treatments in autism
- 00:15:21and the new jersey department of health
- 00:15:23i am here today with one of my
- 00:15:26favorite humans dr mona della hook who's
- 00:15:29a clinical child psychologist with a
- 00:15:31passion for supporting families and
- 00:15:32children
- 00:15:33she's worked widely with
- 00:15:35multi-disciplinary teams in the area of
- 00:15:37developmental and emotional differences
- 00:15:39for over 30 years
- 00:15:40she's a senior faculty member of the
- 00:15:42perfectum foundation and is the trainer
- 00:15:44and consultant to schools
- 00:15:46public and private agencies and parents
- 00:15:49her blog
- 00:15:50and new book beyond behaviors which i
- 00:15:52can't say enough good things about
- 00:15:54uh explores how we can use neuroscience
- 00:15:56and compassion to better understand and
- 00:15:58solve
- 00:15:59children's behavioral challenges um in
- 00:16:02today's talk dr delahook will discuss
- 00:16:04the differences we observe in autism
- 00:16:06we'll introduce a paradigm that helps us
- 00:16:08respect behaviors as signals coming from
- 00:16:10sensory processing differences
- 00:16:12and to respect behaviors for what they
- 00:16:14tell us about each individual
- 00:16:16and the supports they need this approach
- 00:16:18to autism support stands in contrast to
- 00:16:21approaches that involve cajoling
- 00:16:22reinforcing
- 00:16:23and non-reinforcing of surface behaviors
- 00:16:26um
- 00:16:27speaking of dr delahook's new book
- 00:16:29beyond behaviors
- 00:16:30which i have right here
- 00:16:38um she was generous enough to donate
- 00:16:41some books to us that we'll be able to
- 00:16:42give away after the presentation airs
- 00:16:45and we're so
- 00:16:45thankful to you for that um
- 00:16:49i just wanted to mention a few brief
- 00:16:50housekeeping notes um
- 00:16:52if anyone would like to ask a question
- 00:16:54which we highly encourage we hope
- 00:16:56uh you will um you just have to be
- 00:16:58logged into
- 00:17:00the your youtube account in order to
- 00:17:01post in the chat
- 00:17:03uh we'll monitor the chat throughout and
- 00:17:06we'll have time
- 00:17:06um at the end for q a um
- 00:17:10and this session will be available to
- 00:17:11watch at any time
- 00:17:13you don't have to be logged in to watch
- 00:17:15um it will
- 00:17:16stay on our youtube page and um dr del
- 00:17:19hook
- 00:17:20will likely share it as well um
- 00:17:24dr della hook thank you so much for
- 00:17:26being here today
- 00:17:27i'm so excited um so i'm gonna go
- 00:17:32off camera now and um i'll be back on
- 00:17:36for us to chat after right i will share
- 00:17:39my screen thank you so much for such a
- 00:17:41beautiful
- 00:17:42welcome um jen i'm really happy to be
- 00:17:46here
- 00:17:47thank you so much to you talking to
- 00:17:49everybody today
- 00:17:52so here we go
- 00:17:56um it's just a pleasure to be
- 00:18:00here and to talk to you about one of my
- 00:18:03favorite topics and that's supporting
- 00:18:05children
- 00:18:06um with neuro divergent
- 00:18:10minds and brains and all of our children
- 00:18:14who have challenges and particularly um
- 00:18:17with behavioral challenges so it's
- 00:18:20really a joy
- 00:18:21to um to be here now i am just
- 00:18:27two on my there we go
- 00:18:31um what we are going to be talking about
- 00:18:34is
- 00:18:34how we can learn
- 00:18:38to redefine our support for children
- 00:18:42and particularly children who struggle
- 00:18:45with behavioral challenges but also
- 00:18:47developmental differences delays and
- 00:18:50children who don't
- 00:18:51fit into what we might typically think
- 00:18:55of uh in terms of how we want them to
- 00:18:59act and um how we
- 00:19:02uh in our expectations in general
- 00:19:05so one way to think about what we see
- 00:19:09in children's behaviors is what i call
- 00:19:11it a developmental iceberg
- 00:19:13and in an iceberg as you know in an
- 00:19:16iceberg
- 00:19:17the tip of the iceberg is only about 10
- 00:19:20of that big chunk of ice and it's those
- 00:19:23behaviors that we
- 00:19:24see so we will see
- 00:19:27um a child doing something but
- 00:19:30the triggers the causes the
- 00:19:34reasons for those behaviors are really
- 00:19:37invisible
- 00:19:38and that would be that large piece under
- 00:19:41the
- 00:19:42surface of the water um that would
- 00:19:44contain
- 00:19:45the reasons and there are millions of
- 00:19:47reasons that cause the behaviors that we
- 00:19:50see
- 00:19:50that cause the things children say that
- 00:19:53things
- 00:19:53they do the way they move their bodies
- 00:19:57and one of the um main drivers
- 00:20:01of human behaviors not just child
- 00:20:03behaviors but of human behaviors
- 00:20:06is our state our physiological state
- 00:20:10um what is a physiological state that
- 00:20:13basically
- 00:20:13is um our brain body connection you know
- 00:20:17we have a nervous system we have a
- 00:20:18central nervous system
- 00:20:20and an autonomic nervous system that
- 00:20:22connects
- 00:20:23our brain to our body and our body to
- 00:20:26our brain so we're
- 00:20:27constantly getting feedback from
- 00:20:30our body that tells our brain what's
- 00:20:33going on
- 00:20:34and then our brain kind of integrates
- 00:20:36all the information that's
- 00:20:38constantly coming in and then produces
- 00:20:41an action and that's what we see in our
- 00:20:44children
- 00:20:46so when we think about um
- 00:20:50behaviors and how often behaviors
- 00:20:53are the focus of our attention our
- 00:20:56treatment
- 00:20:57um our goals particularly for children
- 00:21:00diagnosed on the autism
- 00:21:02spectrum it brings up an interesting
- 00:21:04question
- 00:21:05and that is should we really be focusing
- 00:21:07on the behaviors
- 00:21:09or should we be focusing on something
- 00:21:11else
- 00:21:14so my work and um what what i have
- 00:21:18been doing in the last several decades
- 00:21:23since i was trained in a
- 00:21:26um a larger mind-body paradigm i
- 00:21:29actually was
- 00:21:30very fortunate to work with
- 00:21:33dr stanley greenspan and dr serena
- 00:21:36weeder
- 00:21:37many years ago when they were developing
- 00:21:39a
- 00:21:40developmental essentially what turns out
- 00:21:43to be a neurodevelopmental approach to
- 00:21:45helping children
- 00:21:46um with developmental differences
- 00:21:48including autism
- 00:21:50and when we studied
- 00:21:53when we learned from across disciplines
- 00:21:56we learned from pediatricians
- 00:21:58and occupational therapists physical
- 00:22:01therapists
- 00:22:02nurses educators
- 00:22:05vision therapists mental health
- 00:22:08professionals
- 00:22:09psychiatrists in these really rich
- 00:22:12cross-disciplinary teams it
- 00:22:15forced essentially a lens shift a
- 00:22:18paradigm shift
- 00:22:20that for me and for many of my
- 00:22:23colleagues
- 00:22:24they just realized that it's important
- 00:22:26to
- 00:22:27not just focus on a child's behavior
- 00:22:30because that's really only a signal
- 00:22:34and so when we sit when we shift the
- 00:22:36lens we can look
- 00:22:38at um all these different things that
- 00:22:41are what we call individual differences
- 00:22:44and
- 00:22:45individual differences in each of us and
- 00:22:47every single human
- 00:22:49is what um drives
- 00:22:53our autonomic nervous system to
- 00:22:56notice things in the environment and to
- 00:22:59create
- 00:23:00all of our behaviors but especially
- 00:23:03those
- 00:23:03behaviors that we might think about as
- 00:23:05challenging
- 00:23:06as non-preferred and those behaviors
- 00:23:09that we want to
- 00:23:11um oftentimes target
- 00:23:14uh for children to change
- 00:23:17so one concept i just wanted to bring up
- 00:23:20is the concept that
- 00:23:22vulnerability that is sensitivity
- 00:23:26to threat in the nervous system
- 00:23:29for children on the spectrum and for
- 00:23:32many many children
- 00:23:34is due to this sense of threat the sense
- 00:23:38of not
- 00:23:38feeling comfortable in my brain and body
- 00:23:41and so
- 00:23:42often times what we see therefore is a
- 00:23:45behavioral challenge
- 00:23:47now currently um oftentimes
- 00:23:51like i said we classify behaviors as
- 00:23:53compliant or non-compliant
- 00:23:55as preferred or non-preferred and this
- 00:23:59leads to
- 00:24:01a a paradigm of
- 00:24:04rewards and consequences uh taking an
- 00:24:07action to teach a child about a behavior
- 00:24:09and encouraging certain behaviors over
- 00:24:11others
- 00:24:12so it's kind of a bi bifurcated look at
- 00:24:16behaviors as either good or bad
- 00:24:17compliant or non-compliant
- 00:24:20now this shift that i propose
- 00:24:23in beyond behaviors is that we look at
- 00:24:26behaviors
- 00:24:27as an adaptation to a child's autonomic
- 00:24:30nervous system
- 00:24:32and basically what does that mean uh it
- 00:24:34means that we can view behaviors
- 00:24:37especially the ones that are persistent
- 00:24:39the ones that are um useful for the
- 00:24:42child and come up a lot
- 00:24:44as cues as to their
- 00:24:48internal world to their invisible needs
- 00:24:51those invisible needs that could include
- 00:24:54feeling uncomfortable or pain
- 00:24:55uh inside the body which is known as the
- 00:24:58interoception what we feel
- 00:25:00inside of our bodies but sensations
- 00:25:03thoughts emotions
- 00:25:05and really moving away from compliant or
- 00:25:08non-compliant classifications
- 00:25:11and especially not to willful
- 00:25:14misbehavior
- 00:25:15or behaviors that are there to serve a
- 00:25:17purpose
- 00:25:18um that is considered negative
- 00:25:23so in my opinion that's why our current
- 00:25:25go-to's are often wrong
- 00:25:27sometimes we blame the child we can
- 00:25:30blame a diagnosis we can say oh
- 00:25:33this behavior is part of the autism
- 00:25:35diagnosis but
- 00:25:37oftentimes in the school systems where i
- 00:25:40where i am observing and working with
- 00:25:43with children it's not looked at
- 00:25:46as something positive so an autistic
- 00:25:49behavior
- 00:25:50may be targeted for change um
- 00:25:54if it's not if it's considered um
- 00:25:57something that is in the category of
- 00:26:00being
- 00:26:01uh changed graphed out for um
- 00:26:05uh the volume the number the frequency
- 00:26:09of
- 00:26:09of these behaviors sometimes uh
- 00:26:12for other reasons children's parents are
- 00:26:16accused of not being consistent enough
- 00:26:18or having so not doing something enough
- 00:26:20in the home
- 00:26:21and i feel like there's a um a lot of
- 00:26:25blame that goes on
- 00:26:26that's inaccurate uh because
- 00:26:29we don't value behaviors for what they
- 00:26:32tell us
- 00:26:33so what happens then we often go to time
- 00:26:36outs positive and negative reinforcement
- 00:26:39schedules
- 00:26:41or we blame a child's will and
- 00:26:44we say things like the child is doing
- 00:26:47this behavior because they're trying to
- 00:26:49get negative attention
- 00:26:52and these are the um
- 00:26:55these are the concepts that i think are
- 00:26:58being replaced
- 00:27:00with another understanding and that is
- 00:27:04that individuals with differences
- 00:27:07and particularly children on the
- 00:27:09spectrum with brain wiring differences
- 00:27:11can have emotional regulation challenges
- 00:27:14meaning
- 00:27:15that ability to stay calm in your body
- 00:27:20is impacted by
- 00:27:23reasons underneath the tip of the
- 00:27:25iceberg every single child every single
- 00:27:28teenager adult is different in terms of
- 00:27:30their
- 00:27:31wiring differences but we do know
- 00:27:35that there are um there is a tendency
- 00:27:38to have over reactivity in some of the
- 00:27:41sensory systems
- 00:27:42so there are differences in some of the
- 00:27:45sensory systems
- 00:27:46that create the need for these adaptive
- 00:27:50behaviors
- 00:27:51and which means that many behaviors and
- 00:27:54particularly repetitive behaviors can
- 00:27:56serve an important purpose
- 00:27:58they are protective they are adaptive
- 00:28:00and
- 00:28:01if they involve movement we know that
- 00:28:04moving whether that's saying something
- 00:28:06by moving your mouth
- 00:28:08or moving your general body and doing
- 00:28:10things
- 00:28:11can help humans feel better
- 00:28:14so when we are struggling when we're
- 00:28:16feeling uncomfortable movement can help
- 00:28:19but what happens often time in our
- 00:28:22educational settings
- 00:28:24is that these various forms of movement
- 00:28:27are
- 00:28:28judged or viewed negatively or targeted
- 00:28:31for
- 00:28:32change and so
- 00:28:35i would like to offer um a
- 00:28:38an idea and that is
- 00:28:42one question that we can ask that's
- 00:28:44really important
- 00:28:46is is this a behavior that is
- 00:28:50purposeful that is willful that is
- 00:28:52malicious that is
- 00:28:53uh done with the child's intent
- 00:28:56which would be what we would consider a
- 00:28:58top-down behavior
- 00:29:00top-down behaviors are planned um they
- 00:29:03serve a purpose
- 00:29:05and they are um that you have to have a
- 00:29:08certain
- 00:29:08level of executive function
- 00:29:11essentially this ability to plan and to
- 00:29:15consider consequences when you have
- 00:29:17these top-down behaviors
- 00:29:20the second category behaviors that are
- 00:29:24not differentiated from top-down
- 00:29:26behaviors would be considered
- 00:29:27bottom-up or body-up behaviors these
- 00:29:30behaviors
- 00:29:31are ones we would consider stress
- 00:29:33responses or stress reactions
- 00:29:36or even stress behaviors as stuart
- 00:29:39chanker calls them
- 00:29:40and what we want to ask is is this child
- 00:29:43experiencing a stress
- 00:29:45response is this a type of behavior that
- 00:29:48we should be focusing on at all
- 00:29:50or is it something that we should be
- 00:29:52looking at
- 00:29:53in terms of immediately going to help
- 00:29:55the child feel
- 00:29:57safer and feel emotionally co-regulated
- 00:30:01through our interactions so
- 00:30:04let me read you just a little story
- 00:30:06about max this was
- 00:30:08a not his real name of course and the
- 00:30:11um the details are shifted to predict
- 00:30:14identity but this is um
- 00:30:18a story that i see often um
- 00:30:22in the work i do when compliance is
- 00:30:25pushed
- 00:30:26over emotional regulation so i'll just
- 00:30:28read it really quick
- 00:30:29it was almost dinner time and little max
- 00:30:32h5
- 00:30:33who was diagnosed with autism spectrum
- 00:30:35was
- 00:30:49a available only to have the behavior
- 00:30:51specialist
- 00:30:52instruct him to sit down and finish his
- 00:30:54task
- 00:30:55the therapist stood in the way blocking
- 00:30:57him and encouraging him to return to the
- 00:30:59table
- 00:31:00frustrated max burst into tears
- 00:31:04screaming and striking the behavior
- 00:31:06therapist in protest
- 00:31:08it took him several hours to calm down
- 00:31:12again
- 00:31:14so what was happening the therapist who
- 00:31:18was
- 00:31:18undoubtedly uh well-intentioned
- 00:31:23was focusing on behavioral goals without
- 00:31:27regard for the child's
- 00:31:28what we call social and emotional
- 00:31:30functioning
- 00:31:32their sense of safety in their body
- 00:31:35which determines our physiological state
- 00:31:39remember
- 00:31:40that state of our body that is either
- 00:31:42calm
- 00:31:43or amped up and ready to run
- 00:31:46also known as the fight or flight
- 00:31:48response
- 00:31:51and in the behavioral paradigm
- 00:31:55the intention was for the child to learn
- 00:31:58that it's important to finish a task
- 00:32:00before you go on to something else and
- 00:32:02it was important to learn for the child
- 00:32:04to learn at this point that there were
- 00:32:06rules
- 00:32:07and that they were they would um be able
- 00:32:11to do what they wanted once they
- 00:32:12finished the task
- 00:32:15what what they were focusing on was
- 00:32:18compliance essentially
- 00:32:19for what we would consider a
- 00:32:21non-preferred task
- 00:32:23and a focus on the behavior rather than
- 00:32:26an inherent focus on relationships and
- 00:32:29especially
- 00:32:30safety in relationships
- 00:32:33one of the things that i've learned
- 00:32:36through my studies and particularly
- 00:32:38from studying the polyvagal theory of dr
- 00:32:41stephen porges
- 00:32:43is that safety in treatment
- 00:32:46sets a neurodevelopmental foundation
- 00:32:50essentially feeling safe in your in your
- 00:32:52brain in your body
- 00:32:54is that really solid foundation that
- 00:32:57children need
- 00:32:58in order to be able to take uh new
- 00:33:01things in
- 00:33:02and stretch and learn new things
- 00:33:05and take risks uh essentially
- 00:33:08this builds resilience in all children
- 00:33:11and humans
- 00:33:12when you feel safe you can take more
- 00:33:15risks
- 00:33:16so what that what that point was kind of
- 00:33:20um that point sometimes gets lost and i
- 00:33:24believe that is because our education
- 00:33:26system
- 00:33:26is working from an outdated model
- 00:33:30essentially that views behaviors in
- 00:33:32isolation
- 00:33:33of the child's body mind and their
- 00:33:36relationships
- 00:33:39and yeah that's
- 00:33:43what's going to change because we know
- 00:33:45that a child is more than
- 00:33:47their behaviors a and b when the
- 00:33:50behavior is serving a purpose
- 00:33:53we want to hear that purpose
- 00:33:56see that purpose have compassion
- 00:33:59for that which the child cannot say in
- 00:34:02words
- 00:34:03the body is saying it and the child
- 00:34:06can't say it in words
- 00:34:07when the child is suffering when the
- 00:34:09child has a stress response
- 00:34:10when the child needs to move like little
- 00:34:13max did
- 00:34:14and his he was compelled out of joy
- 00:34:17and out of the lack of self-control
- 00:34:20which is still developing
- 00:34:22to hug his mama and to run into her arms
- 00:34:25that was way more important that safety
- 00:34:28than having him learn the rule of
- 00:34:31sitting
- 00:34:31and finishing a task first in my opinion
- 00:34:35so it's kind of like uh the old saying
- 00:34:38when all you have is a hammer
- 00:34:39everything looks like a nail
- 00:34:42everything isn't compliance or
- 00:34:44non-compliance
- 00:34:46and this is the point that we need to
- 00:34:49understand in my opinion
- 00:34:51that we can use the information about a
- 00:34:54child sensory system
- 00:34:56about a child's sensory preferences
- 00:34:59um and about especially their
- 00:35:01sensitivities
- 00:35:03because again uh in autism
- 00:35:07so much is being learned but there is
- 00:35:11dif there are differences in reactivity
- 00:35:13to the world
- 00:35:15and i believe even though i'm not
- 00:35:17autistic
- 00:35:18my my teachers my main teachers
- 00:35:21are my autistic clients um
- 00:35:25many of whom now are young adults and
- 00:35:27teenagers
- 00:35:28who can tell me and who guide me as to
- 00:35:31what
- 00:35:32life is like in their own body
- 00:35:35and again there's no stereotyping
- 00:35:38because
- 00:35:39everybody has their own triggers their
- 00:35:42own
- 00:35:42sensory processing profile
- 00:35:45which i think is one of the
- 00:35:48was one of the gifts one of the
- 00:35:51the main benefits
- 00:35:55of learning this dir floor time approach
- 00:35:58that i did so long ago um that helped us
- 00:36:02really uh track these individual
- 00:36:05differences
- 00:36:06and really and treasure them and respect
- 00:36:09them
- 00:36:10uh as those drivers that
- 00:36:13we know contribute to what we see our
- 00:36:16child doing
- 00:36:17so i'm i'm also a big fan uh in addition
- 00:36:21to
- 00:36:21to the people i've mentioned before of
- 00:36:23elizabeth torres
- 00:36:25who is a researcher and a brilliant
- 00:36:28neuroscience researcher and the work is
- 00:36:30um as a clinician i i i understand some
- 00:36:34of the work but i can translate
- 00:36:36uh from from what i learned from her
- 00:36:39from talking to her
- 00:36:40is that these automatic behaviors
- 00:36:43in autism that she has studied can al
- 00:36:46alway can be state regulators that means
- 00:36:50that these automatic behaviors which
- 00:36:52sometimes can look disruptive
- 00:36:55are helping the child regulate their
- 00:36:59physiological state their autonomic
- 00:37:01nervous system and essentially feel
- 00:37:03better
- 00:37:04so she says automatic behaviors are
- 00:37:07subconscious
- 00:37:08survival based and not designed by the
- 00:37:12child to be
- 00:37:12oppositional test limits or make
- 00:37:14teachers or other adults
- 00:37:16uncomfortable or upset and then
- 00:37:20when we target these behaviors when we
- 00:37:22target
- 00:37:23behaviors that are adaptive for
- 00:37:25elimination
- 00:37:26for example a child's um
- 00:37:30need to move their body in a certain way
- 00:37:32or
- 00:37:33a child who has to prove
- 00:37:36that they need to use their noise
- 00:37:38canceling headphones
- 00:37:41and that their their
- 00:37:46vocalizations when they're overwhelmed
- 00:37:49by background noises
- 00:37:50bouncing off the walls are something
- 00:37:53that
- 00:37:53they can't control the child
- 00:37:56shouldn't the student shouldn't have to
- 00:37:58prove to us that they're not volitional
- 00:38:01this is where we're getting into the
- 00:38:04need
- 00:38:05to respect neurodivergent brains
- 00:38:08neurodivergent development and help
- 00:38:12children understand that they can trust
- 00:38:14their body's reactions
- 00:38:15and we will help them there are so many
- 00:38:18different
- 00:38:19um occupations that can help children
- 00:38:22trust their body's reactions better
- 00:38:24such as occupational therapists and
- 00:38:28physical therapists and vision
- 00:38:30therapists
- 00:38:32so what we really want to look at is how
- 00:38:35we can
- 00:38:36uh help with attunement
- 00:38:39attunement is the ability to
- 00:38:42help a child feel seen and heard and
- 00:38:45safe
- 00:38:46and before anything else the groundwork
- 00:38:49across uh the
- 00:38:52neuroscience on resilience across the
- 00:38:55neuroscience
- 00:38:56on attention focus uh what
- 00:38:59um dr dan siegel calls the window of
- 00:39:02tolerance how we help children grow but
- 00:39:06but don't overwhelm them is
- 00:39:09making sure the child feels physically
- 00:39:12and emotionally safe
- 00:39:13through relationships the science of
- 00:39:16relationships is so solid
- 00:39:19and a website that i would recommend
- 00:39:22that it was just so excellent is the
- 00:39:24center on the developing child at
- 00:39:26harvard university
- 00:39:27and dr jack shankoff has is a
- 00:39:30pediatrician
- 00:39:31he's written so much about this
- 00:39:33translational knowledge
- 00:39:35what what parents and pediatricians
- 00:39:38and teachers and therapists need to know
- 00:39:42about helping children feel safe
- 00:39:45through relationships i have seen and
- 00:39:49been in so many classrooms where
- 00:39:51again well-meaning aids behavior
- 00:39:54specialists
- 00:39:55and those individuals who are there
- 00:39:58to support students
- 00:40:01have been instructed through their ieps
- 00:40:04to
- 00:40:04not reinforce behaviors for children and
- 00:40:07so oftentimes they're ignoring
- 00:40:10of the child and only waiting until the
- 00:40:13child does a certain type of behavior
- 00:40:15before they reward them with a kind look
- 00:40:18or a pat on the back and this is what we
- 00:40:22need to change because it's conditional
- 00:40:24it's and it's based again think about
- 00:40:26that tip of the iceberg we're
- 00:40:28following the wrong lead we need to be
- 00:40:31following a deeper lead a more
- 00:40:33a more holistic brain body perspective
- 00:40:37and when we do we can understand is
- 00:40:41there stress response going on
- 00:40:42is what we're asking of the student or
- 00:40:44of the child exceeding
- 00:40:46their ability to carry out the task in
- 00:40:48the moment
- 00:40:49and maybe in the next moment or in the
- 00:40:51next hour or next day
- 00:40:53they will have the proper support in
- 00:40:55their body and from their relationships
- 00:40:57to carry out that task
- 00:41:00so in in doing so i i would recommend
- 00:41:03that we're flexible about
- 00:41:04changing plans and treatment goals and
- 00:41:06that we prioritize things like warmth
- 00:41:09engagement and understanding first
- 00:41:12especially when we see children
- 00:41:15exhibiting
- 00:41:15these stress responses these stress
- 00:41:18behaviors
- 00:41:21so i have a worksheet in the book that
- 00:41:24is entitled behaviors have meaning and
- 00:41:27here um if you if you have the book you
- 00:41:30can
- 00:41:31see fill out these worksheets and you
- 00:41:33can a teacher can fill it out
- 00:41:35and this is um the first question is is
- 00:41:38it possible that the child's behavior
- 00:41:40is meeting a constitutional need that is
- 00:41:43a need in their body
- 00:41:45um does the child need to engage in the
- 00:41:47movement or in the behavior
- 00:41:49in order to communicate something or to
- 00:41:52stay calm
- 00:41:54so these are the types of questions that
- 00:41:56we want to understand
- 00:41:57um the second question there is it
- 00:42:00possible
- 00:42:01that the child's behavior is signifying
- 00:42:04an underlying condition
- 00:42:05such as physical pain or
- 00:42:09emotional pain emotional distress
- 00:42:12so again going deeper where that's why i
- 00:42:15talk about going beyond behaviors
- 00:42:17because we are fixated on behaviors and
- 00:42:19we need to go deeper in my opinion
- 00:42:22to help children feel safer a couple of
- 00:42:25things that you can do
- 00:42:27um as a parent if you are concerned
- 00:42:30about your child's
- 00:42:32uh ability to communicate with others
- 00:42:35it's so important to try to support
- 00:42:37communication
- 00:42:38at it as soon as possible so that the
- 00:42:41child can be our guide this the the
- 00:42:44teenager can be our guide
- 00:42:46and it's critical for for children and
- 00:42:50super important for non our non-speakers
- 00:42:53those who cannot communicate through
- 00:42:56speaking
- 00:42:57or even through um writing but
- 00:43:00to get um professionals on board
- 00:43:04who can help with alternative and
- 00:43:06augmented communication
- 00:43:08and with facilitated communication those
- 00:43:11can those
- 00:43:12those technologies that help children
- 00:43:15and teenagers communicate their needs
- 00:43:18and um many speech and language
- 00:43:21therapists have specialized training
- 00:43:23uh in order to do this and we we
- 00:43:26really want to get that going
- 00:43:30as soon as possible the other thing that
- 00:43:33i recommend
- 00:43:34is that there is
- 00:43:37a common reassuring adult presence with
- 00:43:40consistency
- 00:43:41consistency across the teams
- 00:43:44so if you have a team that
- 00:43:47is has decided for whatever reason
- 00:43:51that they are going to use a
- 00:43:53reinforcement schedule and ignore
- 00:43:54certain behavior i really want parents
- 00:43:56to know
- 00:43:57um find out what
- 00:44:01the techniques are and find out
- 00:44:05think about reflect on if you feel
- 00:44:08comfortable
- 00:44:09with what is being asked of your child
- 00:44:13there are many roads to autism support
- 00:44:18and while i'm talking about that i will
- 00:44:21say that the two websites
- 00:44:24the profectum website and
- 00:44:27maybe we'll put that in the notes on the
- 00:44:29youtube channel
- 00:44:31as well as the icdl website both have
- 00:44:34free resources for parents and
- 00:44:38professionals
- 00:44:39to understand better this approach
- 00:44:42that is not focusing on behavior
- 00:44:45management but is focusing on the whole
- 00:44:47child
- 00:44:49so perhaps it's the systems and
- 00:44:52professionals
- 00:44:53who need to change their perceptions of
- 00:44:54autistic people's behaviors
- 00:44:56and not autistic children who need to be
- 00:44:59changed
- 00:44:59so they appear more neurotypical
- 00:45:03and again i say that with respect
- 00:45:07but i really believe that our culture
- 00:45:09our systems
- 00:45:11those things are the are
- 00:45:14are the structures that we need to
- 00:45:18think about changing before we go in and
- 00:45:21tinker around
- 00:45:22with the child's behaviors without
- 00:45:26knowing what we are doing to the child's
- 00:45:29sense of themselves
- 00:45:30and their sense of safety and their
- 00:45:33sense of belonging
- 00:45:35and acceptance and perhaps
- 00:45:38this will help reduce the very high
- 00:45:41rates
- 00:45:42of anxiety that we see in autistic
- 00:45:45children
- 00:45:46my belief and through my practice
- 00:45:49i have seen that
- 00:45:56once children have less pressure on
- 00:46:00being having their behaviors changed and
- 00:46:04being having joy and
- 00:46:08relational safety as the goal
- 00:46:11rather than behavior change that their
- 00:46:14anxiety
- 00:46:15rates go down the anxiety gets better
- 00:46:19so that's just something again something
- 00:46:21something to think about
- 00:46:24uh as i as i finish a couple of things
- 00:46:27that that children need that all of us
- 00:46:29need but um
- 00:46:30predictability routines attuned
- 00:46:33interactions
- 00:46:35and staying calm um through
- 00:46:38the storms that our children will go
- 00:46:40through
- 00:46:41when they are in that state of distress
- 00:46:44we all go through states of distress
- 00:46:47none of us
- 00:46:48can stay calm permanently we have a
- 00:46:51nervous system we are alive
- 00:46:53life is hard and we are created we're
- 00:46:56adapt we we adapt
- 00:46:58humans adapt by being able to
- 00:47:02do a fight or flight if we're in trouble
- 00:47:04or if our body senses we're in trouble
- 00:47:06and that is i think one of my main
- 00:47:10goals for parents and teachers to
- 00:47:12understand
- 00:47:13is that when we ensure the child
- 00:47:17feels safe in their own way through
- 00:47:20their own individual differences
- 00:47:22behavioral challenges fall away
- 00:47:25naturally
- 00:47:26because the social engagement system
- 00:47:29this
- 00:47:29uh this this ventral vagal system
- 00:47:34uh as it's known in the polyvagal theory
- 00:47:36is called the social
- 00:47:37engagement system and when human beings
- 00:47:40feel safe through social engagement
- 00:47:42they no longer require the behaviors
- 00:47:45that we consider maladaptive
- 00:47:48and those those stormy behaviors that we
- 00:47:51often
- 00:47:52um that are very difficult to witness in
- 00:47:54our children
- 00:47:56so um in order to do that i will
- 00:48:00i'll just put a plug in for self-care uh
- 00:48:03if you're a provider
- 00:48:04if you're a parent if your teacher
- 00:48:08we are the raw material our own nervous
- 00:48:11systems
- 00:48:12really need to be gently taken care of
- 00:48:15so that we can provide
- 00:48:17that calm presence for our children for
- 00:48:19our students so
- 00:48:21i really believe that self-care isn't an
- 00:48:23option
- 00:48:24it's really essential for us because
- 00:48:27then
- 00:48:27we are going to be able to be that tool
- 00:48:29to be that co-regulator to be
- 00:48:31that presence that our children need
- 00:48:36and the the bottom line is that healthy
- 00:48:39relationships
- 00:48:40are not optional they are the vehicle
- 00:48:43that drives development forward
- 00:48:46relationships joy love
- 00:48:49hope feeds the autonomic nervous system
- 00:48:54and it allows children to engage in
- 00:48:57this larger and larger windows of
- 00:49:00tolerance
- 00:49:01because i know we want our children to
- 00:49:03grow i know we want our students to try
- 00:49:06new things
- 00:49:06and to grow their strengths the best way
- 00:49:10to grow strengths
- 00:49:12is through having the foundation of
- 00:49:14healthy relationships
- 00:49:16and um if you're interested in
- 00:49:20in learning more i'll be sending some
- 00:49:22books over um
- 00:49:23to jen but if you're interested in
- 00:49:25learning more i describe
- 00:49:27in detail how we do this for each child
- 00:49:29in my book
- 00:49:30beyond behaviors it's available
- 00:49:33on amazon at reduced rates and
- 00:49:37other places as well so if you if you
- 00:49:40read it have any questions let me know
- 00:49:44i am trying to shift the paradigm to
- 00:49:47a new way of looking at things and um in
- 00:49:50that regard stay in touch
- 00:49:51i'm at um monadella hook phd on facebook
- 00:49:55and at monadella hook on twitter and
- 00:49:57instagram
- 00:49:58and i post um try to post things that
- 00:50:00are helpful for the community for
- 00:50:02parents for teachers
- 00:50:03uh to help us help our these children
- 00:50:06that means so very much to us so
- 00:50:10thank you for listening and i think i
- 00:50:13will stop my
- 00:50:14sharing right now and
- 00:50:17bring jen back on hi thank you so much
- 00:50:22um i definitely have questions
- 00:50:25um we did get a few community questions
- 00:50:28as well so
- 00:50:29i'll start with those and if anyone else
- 00:50:32would like to ask questions now please
- 00:50:33do
- 00:50:34um okay so the first question is what
- 00:50:38are the main barriers for your approach
- 00:50:40to become a mainstream
- 00:50:41acceptable approach
- 00:50:47well wow that's a really good that's
- 00:50:49that's the that's a big question
- 00:50:53um that is a very big question and
- 00:50:56uh this is what i have to say about that
- 00:51:00the the developmental approaches
- 00:51:03and the neurodev it's now known as
- 00:51:06neurodevelopmental but
- 00:51:07you know 25 years ago when we were all
- 00:51:09learning this it was
- 00:51:10a more of a developmental approach
- 00:51:13developmental
- 00:51:14approaches were started by
- 00:51:17clinicians who who studied infant mental
- 00:51:20health
- 00:51:21and clinicians who studied infant mental
- 00:51:23health way back when
- 00:51:25were not particularly
- 00:51:29uh eager or able for whatever reason
- 00:51:33i don't know to do research so
- 00:51:36the the real answer to your question is
- 00:51:39that the money is going to go
- 00:51:40where the research is so
- 00:51:44hope on the horizon there's a lot of
- 00:51:46research going on right now that
- 00:51:48supports
- 00:51:49uh this approach one example is the work
- 00:51:52of
- 00:51:52jonathan green in the uk so they have
- 00:51:56um they have an approach that it has
- 00:51:59uh um study you know
- 00:52:03randomized control studies and they're
- 00:52:04going on with with these
- 00:52:06uh different forms of research that is
- 00:52:09going to
- 00:52:10um eventually uh take over
- 00:52:14or or at least match um what's there
- 00:52:17right now
- 00:52:18i'm not a researcher myself but um
- 00:52:21they you can find uh the the
- 00:52:24critiques of the original research uh
- 00:52:27done by
- 00:52:28um done at ucla on behavior therapy
- 00:52:31and there are quite a few critiques
- 00:52:33about that research now
- 00:52:35but it is used as a um
- 00:52:38as evidence so long answer to
- 00:52:41your question is a few things
- 00:52:45um clinicians who who
- 00:52:48know it works but autistic advocates
- 00:52:51themselves
- 00:52:53are speaking up against behavioral
- 00:52:55techniques
- 00:52:56that harmed them yeah this is the main
- 00:53:00push so we need to get away from
- 00:53:03oh the research says this is it and so
- 00:53:06we're going to fund this and i
- 00:53:07call on i call on tricare
- 00:53:11for our u.s military families
- 00:53:14no please give families the choice
- 00:53:17a lot of insurance companies are not
- 00:53:19giving families the choice so
- 00:53:20the the push is coming from autistic
- 00:53:24advocates themselves telling us
- 00:53:27telling researchers telling insurance
- 00:53:29companies
- 00:53:30i didn't appreciate the way i was
- 00:53:33treated
- 00:53:35would you like to add to that jen um
- 00:53:38yeah i would say uh one of the other big
- 00:53:42things
- 00:53:42i mean of utmost importance to me is to
- 00:53:45listen to the
- 00:53:46autistic adults because they're the very
- 00:53:49people who
- 00:53:50have experienced this and you know
- 00:53:53there's no other field i can think of
- 00:53:54who doesn't take into account
- 00:53:56the feedback from their patients right
- 00:53:58so you know that's number one
- 00:54:00um i think that a lot of schools need to
- 00:54:04perhaps make it more of a practice to
- 00:54:07uh take perspectives from
- 00:54:10from you know the people who have been
- 00:54:13through these systems
- 00:54:14um the other thing is you know kind of
- 00:54:18really taking a hard look at the
- 00:54:21so-called evidence that does exist now
- 00:54:25that you know is used as a as a
- 00:54:28reason to fund certain things but it it
- 00:54:31doesn't necessarily hold up to
- 00:54:34the scientific rigor that we expect in
- 00:54:36most
- 00:54:37areas so um you know
- 00:54:41i think that there needs to be a coming
- 00:54:43together of
- 00:54:44the autistic community who is you know
- 00:54:47they're
- 00:54:48like basically begging for all of us to
- 00:54:51listen
- 00:54:52um as well as professionals to kind of
- 00:54:56you know it's like we kind of have to
- 00:55:00almost be
- 00:55:01forced to make ourselves a little
- 00:55:04uncomfortable
- 00:55:06so that we can speak up for what we know
- 00:55:09because
- 00:55:10all of the information that we have
- 00:55:12available tells us that
- 00:55:14you know we know that compliance
- 00:55:18isn't helpful we know that autistic
- 00:55:21people have
- 00:55:22sensory differences including
- 00:55:25sensory gifts um and
- 00:55:29you know that it's a different way of of
- 00:55:31experiencing the world and so like
- 00:55:34uh we had dr dora make dora raymaker on
- 00:55:37recently and i thought she made such a
- 00:55:38great point because she
- 00:55:40she mentioned that there's research
- 00:55:42about how doctors
- 00:55:43tend to have higher rates of depression
- 00:55:45and suicide because they're constantly
- 00:55:48having to mask their feelings with
- 00:55:50families
- 00:55:51they go through very tough situations
- 00:55:53and have to hide
- 00:55:54their emotions because they're trying to
- 00:55:57have
- 00:55:57you know this this professionalism and
- 00:56:00so
- 00:56:01like we know that when people have to
- 00:56:03hide who they are
- 00:56:05that it hurts them you know and so
- 00:56:09autistic people would obviously
- 00:56:12experience the the same feelings and one
- 00:56:15of my questions
- 00:56:16actually to you mona was you know as
- 00:56:18someone with your
- 00:56:19background um what
- 00:56:23does it do to a person to be
- 00:56:25misunderstood
- 00:56:27for their childhood and their and their
- 00:56:30you know teen years like what from a
- 00:56:33psychologist's perspective like what
- 00:56:35does that do to a person's
- 00:56:37emotional well-being
- 00:56:41well first off first i will
- 00:56:44um give a uh an
- 00:56:47answer that will calm parents and soothe
- 00:56:50parents to know
- 00:56:51that i really believe that children
- 00:56:54um that the love from from their an
- 00:56:57acceptance from parents
- 00:56:58it carries the day so if your child has
- 00:57:01had
- 00:57:01um you know certain treatments that now
- 00:57:04maybe you're questioning
- 00:57:06just know your love for your child
- 00:57:09is solid it's powerful
- 00:57:12and that your child knows you love them
- 00:57:15so
- 00:57:16having said so that's the soothing part
- 00:57:18but but just
- 00:57:19imagine this um i work since i'm an
- 00:57:22infant mental health specialist i
- 00:57:24i see children as as young as you know
- 00:57:28a few months two to three and
- 00:57:31imagine that you're doing something
- 00:57:35that makes you happy or you're doing
- 00:57:38something with your body that makes you
- 00:57:39happy or
- 00:57:40or or humming something over and over
- 00:57:42again or wanting to do
- 00:57:43a repetitive thing it makes you happy
- 00:57:45and then and then someone comes and
- 00:57:48either takes it away
- 00:57:49or or asks or holds it hostage for you
- 00:57:53to do something else
- 00:57:55i mean it gives you a message
- 00:57:58it gives the child a message that
- 00:58:00something that they
- 00:58:01inherently treasure is
- 00:58:05going to be out of their reach or
- 00:58:08they have to pretend like they're not
- 00:58:09interested in it so they can get what
- 00:58:11they want
- 00:58:12so i'm concerned about that i think that
- 00:58:15it can give a child a message
- 00:58:17of conditional acceptance and and safety
- 00:58:21and that's what i want to change i want
- 00:58:24the neuroception of safety i didn't
- 00:58:25mention that in the talk but
- 00:58:27neuroreception is our
- 00:58:28our human um perception of threat and
- 00:58:30safety i want children to feel so
- 00:58:32safe and accepted and and i think
- 00:58:35parents
- 00:58:36are are providers and people in my
- 00:58:39profession
- 00:58:40and others make parents so afraid of
- 00:58:43autistic behaviors
- 00:58:44like oh no this is a part of of the
- 00:58:47diagnosis and
- 00:58:48i really think we need to stop that
- 00:58:49because there are so many autistic
- 00:58:52children
- 00:58:53it's part of our it appears to be a
- 00:58:56a part of our human diversity and
- 00:59:00we it when we scare or
- 00:59:04have a parent view something in their
- 00:59:06child
- 00:59:07as as um
- 00:59:10something they need to either get rid of
- 00:59:12or be afraid of it can
- 00:59:14impact the relationship of calmness and
- 00:59:17joy that the parent has
- 00:59:19yeah um i had saved a quote actually
- 00:59:22from you
- 00:59:23and you said much of what i do as a
- 00:59:25psychologist is undoing the distressed
- 00:59:27cause to parents by the deficit medical
- 00:59:29model of the dsm
- 00:59:30we need not fear developmental
- 00:59:32differences but use them as a
- 00:59:33compassionate road
- 00:59:34roadmap to deepen relationships
- 00:59:36communication and joy
- 00:59:38and i think that's so true because
- 00:59:40speaking from experience
- 00:59:42it is extremely distressing to go
- 00:59:44through the diagnosis process
- 00:59:46it's a deficit model every intervention
- 00:59:49is based on deficits you know all of the
- 00:59:52evaluations that parents
- 00:59:53are listening to when they hear the way
- 00:59:56that their children are being described
- 00:59:59it's really not healthy it's it sets a
- 01:00:02you know and when
- 01:00:03uh this will go back to perhaps
- 01:00:05neurosception and polyvagal theory but
- 01:00:08you know when we're stressed
- 01:00:11we can't think clearly and we can't make
- 01:00:14good decisions and we can't
- 01:00:15support our children the way that we
- 01:00:17need to so
- 01:00:19you know all of this
- 01:00:22is incredibly important to take
- 01:00:26note of because you know
- 01:00:30it it directly impacts not only us but
- 01:00:32our children
- 01:00:33um and um
- 01:00:37one of the things i wanted to mention as
- 01:00:39well was
- 01:00:41going back to the stimming and the and
- 01:00:44the you know automatic behaviors
- 01:00:46um uh because we i see that we do have
- 01:00:48one question
- 01:00:49referring to that um we know from
- 01:00:53research that this is adaptive and that
- 01:00:56you know sometimes it's it's not
- 01:00:58volitional and it's like a nervous
- 01:01:00system response
- 01:01:02um but it does seem to be adaptive both
- 01:01:04by first-hand account and research
- 01:01:07so what's your advice to
- 01:01:11parents and professionals because i've
- 01:01:13heard professionals say well you know
- 01:01:15we believe in sing but it has to be at
- 01:01:17certain times or they can't do it during
- 01:01:18this time
- 01:01:20what is your response to that
- 01:01:23my response to that is
- 01:01:26consider what message we're giving to
- 01:01:28the child
- 01:01:30i mean if we say oh that's okay uh you
- 01:01:32can stem
- 01:01:33uh in in uh for 10 minutes
- 01:01:37at the end of the hour or or you know
- 01:01:40something like that the message is
- 01:01:42this is a behavior that you need to
- 01:01:45control
- 01:01:45and it's it's not a part of who you are
- 01:01:49it's something that will tolerate if if
- 01:01:51that
- 01:01:52and again hold hostage for you to do
- 01:01:54your other stuff
- 01:01:55the message is not of acceptance the
- 01:01:57messages of
- 01:01:59uh were still it's i mean it's better
- 01:02:03you know it's better than just trying to
- 01:02:05eliminate behavior altogether but i
- 01:02:07really think we need to change
- 01:02:08our our language we need to change the
- 01:02:10way we view
- 01:02:12and the way we value behavioral
- 01:02:16differences in autism
- 01:02:17and be very careful about what we fool
- 01:02:19around with
- 01:02:20unless we know that
- 01:02:24um that you know i guess there's
- 01:02:27there's another piece one one piece is
- 01:02:29that we do want to make sure
- 01:02:31that behaviors are not coming from
- 01:02:33physical pain
- 01:02:35so we really want to make sure that or
- 01:02:38emotional pain so if
- 01:02:40if a child is having stress behaviors
- 01:02:42for example and they may have
- 01:02:44reflux or tummy issues or gut issues
- 01:02:46which many of our kids do
- 01:02:48we really want a sensitive gi doctor or
- 01:02:51pediatrician
- 01:02:52online uh to work on teams you need a
- 01:02:55team to make sure the child's not in
- 01:02:56physical pain
- 01:02:58but if the behavior is enjoyed by the
- 01:03:00child if the behavior is serving as liz
- 01:03:02torres says
- 01:03:03an adaptive purpose to reduce the amount
- 01:03:06of
- 01:03:06internal suffering a child might be
- 01:03:08having then in my opinion
- 01:03:10why not celebrate the behavior why not
- 01:03:14why not look at it and saying wow that's
- 01:03:17pretty cool that your body's doing that
- 01:03:18right now
- 01:03:19and is there anything else you need for
- 01:03:21me yeah
- 01:03:23yeah i think and it's that goes into the
- 01:03:26strength-based model of
- 01:03:28you know look at you trying to
- 01:03:30self-regulate yourself
- 01:03:32like i'm so happy for you
- 01:03:35you're able to do this to help yourself
- 01:03:38you know be regulated
- 01:03:39yes and you can say mommy or daddy
- 01:03:43i do this to feel more regulated and you
- 01:03:46do this to feel more regulated and
- 01:03:48teachers kindergarten teachers and
- 01:03:50elementary school teachers
- 01:03:52can talk to the whole class about that
- 01:03:55and normalize it
- 01:03:56as not as something that's part of a
- 01:03:58diagnosis but
- 01:03:59that is something that's part of um
- 01:04:02our our ability to take care of what our
- 01:04:05body is asking us for
- 01:04:07um and again oftentimes with little
- 01:04:09children it's not conscious
- 01:04:10it's just happens yeah and i
- 01:04:14that also goes back to what you said
- 01:04:16about um
- 01:04:18um kind of like the circular reasoning
- 01:04:20that happens
- 01:04:21it's like oh they're doing this because
- 01:04:23the person is doing this because they're
- 01:04:25autistic
- 01:04:26um which really you know that
- 01:04:29is not that's not a good reasoning like
- 01:04:32the person is trying to adapt to the
- 01:04:35circumstances
- 01:04:37you know that they're enduring in their
- 01:04:38body and the environment
- 01:04:40um which we all do it's just that we all
- 01:04:43do some people have you know different
- 01:04:46um
- 01:04:47uh what's the word i'm looking for that
- 01:04:50you know
- 01:04:50they may have more intense um need to do
- 01:04:53that in certain places
- 01:04:55that's right and our as humans our
- 01:04:57thresholds for what we
- 01:04:58consider comfortable or uncomfortable
- 01:05:00shift
- 01:05:01so i think that's one thing what that we
- 01:05:04need to appreciate
- 01:05:05is that sometimes in autism the state
- 01:05:08shifts
- 01:05:09meaning our our fight or flight
- 01:05:13you know you know sometimes that fight
- 01:05:15or flight
- 01:05:16urge happens fast because you can feel
- 01:05:19over from overwhelmed quickly by a
- 01:05:22sensory stimulus depending on the child
- 01:05:25and then it's hard it's hard for
- 01:05:27caregivers that's why i think self-care
- 01:05:29is really important because when the
- 01:05:30child is going into
- 01:05:32like what we call the red pathway when
- 01:05:34they go into this
- 01:05:36uh as if they're running away or or
- 01:05:39endangering
- 01:05:40themselves or others of course we have
- 01:05:41to take compassionate action and quickly
- 01:05:44we have to protect the child
- 01:05:46but it's a whole mind shift on on how we
- 01:05:48look at
- 01:05:49behaviors and and how we and how we view
- 01:05:52them with compassion rather than
- 01:05:53through the lens of the dsm yeah um we
- 01:05:57have a couple comments
- 01:05:58um which are really good uh
- 01:06:01from teresa saying yes we're hearing
- 01:06:04more and more from
- 01:06:05adult autistics about how they were
- 01:06:07injured we have to challenge what we've
- 01:06:08been doing for the last 25 years
- 01:06:10enforcing compliant behavior
- 01:06:14and
- 01:06:17wait there was one other one here um oh
- 01:06:20and uh i feel like this approach would
- 01:06:21also reduce the incidence of damaging
- 01:06:23restraint and seclusion
- 01:06:25ah yes a hundred percent
- 01:06:29and if you're interested in that um the
- 01:06:31uh the
- 01:06:32the organization the alliance against
- 01:06:34seclusion and restraint
- 01:06:36by stevens beth talley uh and all
- 01:06:39it's a facebook and it's an organization
- 01:06:42that
- 01:06:43is going to this use neuroscience
- 01:06:47we use seclusion and restraint on
- 01:06:49individuals who are in that
- 01:06:50bright red fight-or-flight zone
- 01:06:53when what they need is of course to be
- 01:06:55kept safe
- 01:06:56in others but what they need is
- 01:06:59compassion
- 01:07:00compassionate awareness that they are
- 01:07:02feeling
- 01:07:03so under threat so thank you for that
- 01:07:06comment whoever
- 01:07:07that's great yeah yeah um one person
- 01:07:10said
- 01:07:11uh being severe autistic and deaf means
- 01:07:14you have cognitive impairment this is
- 01:07:16what a director of special services
- 01:07:17always says
- 01:07:20absolutely not yeah absolutely not
- 01:07:24um the i am i i'm
- 01:07:27the the crossover with cognitive
- 01:07:31impairment
- 01:07:31and autism is based on old research i
- 01:07:34think it's very hard to measure
- 01:07:36and we have to always assume the child
- 01:07:39is not
- 01:07:39cognitively impaired we have to assume
- 01:07:42that
- 01:07:43and then communicate with the child once
- 01:07:46um deaf and autistic well we have a lot
- 01:07:49of
- 01:07:50we have a lot of supports that that
- 01:07:51child needs right we have to get a lot
- 01:07:53of communication supports in there but
- 01:07:55you and
- 01:07:56you never assume or think oh there's a
- 01:08:00good chance that there's a co-occurring
- 01:08:02cognitive delay until you get to know
- 01:08:05the child and
- 01:08:06and when you do you know you're going to
- 01:08:10find that there's
- 01:08:11always thoughts and and ideas there
- 01:08:15so yeah that's it we need to
- 01:08:18fight that in special ed and i i again
- 01:08:21um i hear statistics thrown around in
- 01:08:24ieps about
- 01:08:26there's likely cognitive delay but
- 01:08:29oftentimes it's put out there
- 01:08:31while you uh based on a test that a
- 01:08:34standardized test the child's given
- 01:08:36that's not uh curated for an autistic
- 01:08:39individual to answer
- 01:08:41so it's invalid yeah yeah
- 01:08:44yeah i totally agree and i also think
- 01:08:46that it
- 01:08:48is very dangerous territory because if
- 01:08:50people make those
- 01:08:51assumptions and they withhold
- 01:08:54opportunities from the person
- 01:08:56they're actually causing more harm to
- 01:08:59the person
- 01:09:00because of their you know assumptions
- 01:09:03and so we have to make sure that that
- 01:09:05doesn't happen
- 01:09:06oh jen we really have to make sure and
- 01:09:09we especially have to make sure for
- 01:09:11those children who
- 01:09:13don't have advocates who have or who
- 01:09:16have advocates who are so
- 01:09:17stretched who are working full-time who
- 01:09:20may not understand the system as well
- 01:09:23and who are told things about their
- 01:09:26child that
- 01:09:27that may not be true you could change
- 01:09:29the trajectory of a person's life
- 01:09:32by having a note on their ongoing
- 01:09:36um paperwork and ieps that there's a
- 01:09:40that they're suspected to have low
- 01:09:42intellectual
- 01:09:43uh abilities and it's just um it's not
- 01:09:46okay
- 01:09:47yeah um and i just wanted to say one
- 01:09:49more thing on that
- 01:09:50um to tatiana because there's a really
- 01:09:53good article by john hussman
- 01:09:55and he gives a thought experiment of um
- 01:09:58imagine if someone asked you your
- 01:10:00favorite color and you couldn't speak or
- 01:10:02move your eyes or point
- 01:10:04how would you answer the question and
- 01:10:06what if people just assumed that you
- 01:10:07didn't understand or you didn't have a
- 01:10:09favorite color
- 01:10:10you know so i think that
- 01:10:13is like really helpful in imagining that
- 01:10:16you know if you
- 01:10:17have movement differences um you know
- 01:10:21you're not going to be able to answer
- 01:10:23certain questions and that doesn't mean
- 01:10:25that you
- 01:10:25have cognitive uh disabilities it means
- 01:10:30that you might have
- 01:10:31motor uh you know movement
- 01:10:34uh compromise yeah thank you that's
- 01:10:37beautiful
- 01:10:38that's beautiful and imagine that
- 01:10:41that you know that locked-in-ness of
- 01:10:44of when when you can't let people know
- 01:10:47what color
- 01:10:48you know what what you're in what your
- 01:10:50ideas are
- 01:10:51so never assume that a child doesn't
- 01:10:54have these good ideas we have to assume
- 01:10:57that the child has ideas and it's our
- 01:10:59responsibility to get them
- 01:11:02uh to help them show us that's our
- 01:11:05responsibility not theirs because
- 01:11:07they're like you said when there's
- 01:11:09significant motor impairment
- 01:11:10then even um sometimes pointing is a
- 01:11:13challenge
- 01:11:14yeah but there are workarounds there are
- 01:11:17workarounds
- 01:11:18yeah so the challenge could be uh
- 01:11:21put back on the adults supporting the
- 01:11:24person
- 01:11:25and you know finding ways that the
- 01:11:27person can
- 01:11:28answer and that might take some you know
- 01:11:31trial and error but absolutely it it
- 01:11:34can't
- 01:11:35it can and it can take some resources
- 01:11:36but we have to do it it's the
- 01:11:38the risk is too great to um to not do it
- 01:11:42yeah um okay so there's another question
- 01:11:45that
- 01:11:46says what if the behavior is malicious
- 01:11:49or planned
- 01:11:49then is it appropriate to have a
- 01:11:52consequence
- 01:11:54so great question and then i would go to
- 01:11:57kind of the definition of
- 01:11:59of malicious or plan so um i'm curious
- 01:12:02like what that what exactly what that
- 01:12:04would mean so
- 01:12:06let's just let's just have two different
- 01:12:08scenarios so
- 01:12:10uh take sibling rivalry for example
- 01:12:13and um let's just say that a child is
- 01:12:16sitting um at it at the dinner table
- 01:12:20and then a high
- 01:12:23or low frequency sound that nobody else
- 01:12:26can except for the autistic child can
- 01:12:27hear goes
- 01:12:28through and all of a sudden the child
- 01:12:31goes into complete stress response but
- 01:12:33nobody knows
- 01:12:34underneath the tip of the iceberg and
- 01:12:36all of a sudden there's a fighter flight
- 01:12:38and he whacks his sibling
- 01:12:40well one could say that looks malicious
- 01:12:45but was it malicious no it was a stress
- 01:12:47response so i think my
- 01:12:49the thing we need to ask is is this a
- 01:12:51top-down behavior or a bottom
- 01:12:53body up behavior is this an instinctual
- 01:12:56response
- 01:12:57in autism oftentimes
- 01:13:01it's not malicious and it's not
- 01:13:03intentionally
- 01:13:04planned uh on the other hand if you have
- 01:13:08a child
- 01:13:08who is um you know
- 01:13:12testing out the boundaries of their life
- 01:13:15who who you may have told that they
- 01:13:17can't have another
- 01:13:19piece of dessert or cake and they um
- 01:13:24they they sneak into the kitchen and
- 01:13:26take some more cake into their room
- 01:13:27that's not malicious it's just breaking
- 01:13:29the rules
- 01:13:30that doesn't mean you don't address it
- 01:13:32and have boundaries and have family
- 01:13:34family expectations and rules
- 01:13:37it doesn't mean being compassionate and
- 01:13:39being understanding of behaviors
- 01:13:41doesn't mean that you are allowing a
- 01:13:44child not to have boundaries
- 01:13:46yeah all children need boundaries yeah
- 01:13:49exactly
- 01:13:49uh the person added a little more detail
- 01:13:52said student is right
- 01:13:53student is riding a horse and wants to
- 01:13:55go outside instructor wants a task first
- 01:13:57then go outside
- 01:13:58student refuses task then spits on
- 01:14:00instructor
- 01:14:03stress response so let's think about
- 01:14:06that i love thank you
- 01:14:07thank you okay so
- 01:14:11we're working on uh okay
- 01:14:14we're working on if you do this
- 01:14:18then you get that so this child loves
- 01:14:21the
- 01:14:21horseback ride the horse going on the
- 01:14:23horse
- 01:14:24and so the um the
- 01:14:28the child uh or or teenager
- 01:14:31is told that they have to
- 01:14:35perform a certain thing they have to do
- 01:14:38this
- 01:14:38which often increases your stress load
- 01:14:40right because then all of a sudden
- 01:14:42you're under this performance
- 01:14:44and you have the excitement of wanting
- 01:14:46to do the ride the horse
- 01:14:48so then they crank it and they say
- 01:14:52sorry you gotta do this first in order
- 01:14:53to get out to the horse
- 01:14:55when their body may be really wanting to
- 01:14:57go into the horse
- 01:14:59all of a sudden it goes from the ventral
- 01:15:02vagal system which is
- 01:15:03i'm in control of my behaviors to the
- 01:15:07sympathetic fight or flight and spitting
- 01:15:10is a classic
- 01:15:11sympathetic fight or flight behavior so
- 01:15:14thanks for the detail on that i would
- 01:15:16really
- 01:15:17think about this if then
- 01:15:21if you behave and
- 01:15:24and perform for us then you get to go
- 01:15:27ride a horse
- 01:15:28instead of following the state of the
- 01:15:30child
- 01:15:31look at this child's nervous system how
- 01:15:34do they need it ask them do you need to
- 01:15:36move right now
- 01:15:36would you like to go ride the horse
- 01:15:38before you finish your project
- 01:15:40what's wrong with including the child
- 01:15:43as they do with collaborative problem
- 01:15:45solving raw screen cps
- 01:15:47why not include the student in on the
- 01:15:50solution
- 01:15:51so that's that was a great question
- 01:15:54yeah now of course i don't know because
- 01:15:57it's theoretical i'm i'm not there
- 01:15:59but my guess i
- 01:16:02i think too mona that isn't this uh
- 01:16:05even though you know we don't want a
- 01:16:08child to spit
- 01:16:09you know that's not good we don't we're
- 01:16:12not happy about that but
- 01:16:14it's also a form of self-advocacy to say
- 01:16:17like i'm not in a good place right now
- 01:16:20this is you know
- 01:16:21and and like i can't handle this right
- 01:16:24now
- 01:16:24and so even if it's not um
- 01:16:27even if it's not like a behavior that we
- 01:16:29necessarily like
- 01:16:32like um it is a message that
- 01:16:35like perhaps we need to pump the brakes
- 01:16:37and like you said you know
- 01:16:39realize that it's a stress response and
- 01:16:41maybe we're asking too much
- 01:16:43at that time yeah and it doesn't mean
- 01:16:46that we are saying spitting is okay
- 01:16:50that person can obviously say
- 01:16:53what this is spinning is is is not
- 01:16:55condoned
- 01:16:56in in our setting here it's not okay
- 01:17:00but that child
- 01:17:03what we have to assume is that that
- 01:17:04child did not want to spit
- 01:17:06and if that child liked the person that
- 01:17:08they spent on they probably
- 01:17:09felt ashamed afterwards once they calmed
- 01:17:12down and embarrassed
- 01:17:14and and unable to talk about it because
- 01:17:17it looked like they were doing it to get
- 01:17:20out of
- 01:17:20to get out of doing the homework and
- 01:17:22that's the paradigm shift that we need
- 01:17:24to do is to assume
- 01:17:26this child if this child had the choice
- 01:17:29to talk to us to bargain with us say oh
- 01:17:32no i really please can we just ride the
- 01:17:34horse
- 01:17:34but the child didn't so the body got
- 01:17:37stressed
- 01:17:38and that's what we need to learn is that
- 01:17:39we don't teach a lesson
- 01:17:41to a child who is in that red response
- 01:17:43we we
- 01:17:44like whoa oh buddy that was that was a
- 01:17:47big ask
- 01:17:48i can see that was a big ask right now
- 01:17:50and your
- 01:17:51your body's upset and then let's work
- 01:17:53together
- 01:17:54yeah thank you so much for that um
- 01:17:58okay i think i have one more question
- 01:18:01um one of the biggest questions
- 01:18:05or most frequent things i encounter is
- 01:18:09parents whose child was just diagnosed
- 01:18:12they're very afraid as we mentioned the
- 01:18:14trauma that the dsm
- 01:18:16you know kind of creates um
- 01:18:20there but these you know parents like i
- 01:18:23remember it was one of the most
- 01:18:24vulnerable times of my life because i
- 01:18:26didn't know anything about
- 01:18:27autism i had seen things that were
- 01:18:30stigmatizing and i
- 01:18:31you know most of what i knew was not
- 01:18:35positive unfortunately at that time
- 01:18:39but i remember being like afraid like i
- 01:18:42don't know if i know how to parent her
- 01:18:44you know what if i mess up like you know
- 01:18:47what do i do
- 01:18:48how do i help her so what and
- 01:18:51and i we're gonna link in this video
- 01:18:55um because i love your article for the
- 01:18:5710 things to ask for when your child is
- 01:18:59diagnosed
- 01:19:00i think it's helpful and i share that
- 01:19:02with a lot of parents actually
- 01:19:04um but what advice do you have for
- 01:19:08new parents who are in that space of
- 01:19:11like being afraid and trying to figure
- 01:19:14out what's next
- 01:19:18well um
- 01:19:22i i i want them to know
- 01:19:26that this field
- 01:19:29like the field that i'm in the field
- 01:19:31that we're in of
- 01:19:33of those professionals who are charged
- 01:19:36with diagnosing
- 01:19:38um and and helping children with
- 01:19:41differences
- 01:19:42the field is in a huge shift
- 01:19:45right now and so there's a chance that
- 01:19:48you would get somebody like me
- 01:19:50that would say you know what i'm going
- 01:19:52to tell you something that is
- 01:19:54kind of could potentially be really
- 01:19:57rock your world but i'm going to tell
- 01:19:59you something else first
- 01:20:01and then something else first is that um
- 01:20:05you have an incredible child with some
- 01:20:06brain wiring differences
- 01:20:09and we're you go you're going to have a
- 01:20:11great team to help you figure out
- 01:20:14how to support your child and this is
- 01:20:17going to be something that is um this
- 01:20:20is your child this is the we we are we
- 01:20:23don't have to
- 01:20:24um you you are going to
- 01:20:28hear a lot of different opinions some
- 01:20:32of what you're going to hear is that
- 01:20:35this
- 01:20:35is a disorder and that it needs to be
- 01:20:38treated
- 01:20:38and it needs to be treated with a
- 01:20:40certain protocol
- 01:20:43and i just want parents to know that
- 01:20:47they're it's like it's a good time now
- 01:20:49is a good time because we know more than
- 01:20:51ever we have autistic advocates
- 01:20:53we have a new approach a developmental
- 01:20:56compassionate
- 01:20:57loving approach that can help
- 01:21:00all students and then you can figure out
- 01:21:03which behaviors you want to tinker with
- 01:21:05and what you just let be
- 01:21:08so i guess what i what i'd say is no
- 01:21:11there's so many choices out there
- 01:21:13there's a lot of different
- 01:21:14opinions some of those opinions are
- 01:21:16going to rock your world
- 01:21:19and i want you to know that you don't
- 01:21:21have to let them rock your world because
- 01:21:23there are resources out there for you
- 01:21:25to hear um from other parents and from
- 01:21:28autistic individuals themselves
- 01:21:30that this isn't a condition that we need
- 01:21:32to despair about
- 01:21:34or or have um
- 01:21:38or have have sadness about this is
- 01:21:42a human diverse brain
- 01:21:45which is part of why our world is so
- 01:21:48amazing
- 01:21:50and i guess the other thing i would say
- 01:21:52is that
- 01:21:53i've had the privilege of working with
- 01:21:57individuals who are diet who i diagnosed
- 01:21:59when they were two or three and now
- 01:22:01are in the world happy
- 01:22:05loving in different situations
- 01:22:08connected amazing people so
- 01:22:14just don't get thrown by a diagnosis
- 01:22:19yeah yeah compassion for yourself for
- 01:22:22providers for your
- 01:22:24your child and i guess there's also one
- 01:22:26last thing i i'll say
- 01:22:28and that is that if your provider
- 01:22:32if you have a provider that is doing
- 01:22:35uh an intervention or suggesting an
- 01:22:37intervention for you
- 01:22:38that goes against your instincts your
- 01:22:41family's culture your
- 01:22:43family's values um and especially your
- 01:22:46instincts as a
- 01:22:47as the parent of this child
- 01:22:50you you don't have to go along with it
- 01:22:52yeah you just say no
- 01:22:54you can say i i don't feel comfortable
- 01:22:56with this and
- 01:22:58talk to the supervisor talk to the um
- 01:23:01talk to the team and get the type of
- 01:23:04treatment that
- 01:23:04you feel best supports your child's
- 01:23:08social and emotional development they're
- 01:23:10feeling loved they're feeling safe
- 01:23:13and their their communication supported
- 01:23:16so they can let you know what they want
- 01:23:20yeah i agree um
- 01:23:23[Laughter]
- 01:23:25i think so i think that was the last
- 01:23:27question we had from the community
- 01:23:29um i just wanted to tell you again what
- 01:23:33a difference you've made
- 01:23:34and i like i said
- 01:23:37i suggest your work to every person i
- 01:23:40know because it's so transformative
- 01:23:42and like this is what our kids deserve
- 01:23:47our kids deserve to be accepted and
- 01:23:50loved for who they
- 01:23:50are to be understood with
- 01:23:54as much information as we have today um
- 01:23:57you know and and um i'll mention that in
- 01:24:01uh
- 01:24:02next month we have dr dora raymaker
- 01:24:05coming back
- 01:24:06and she's going to be talking about
- 01:24:07autistic burnout and the new research
- 01:24:09that they have on that as well
- 01:24:11and so these things are all connected
- 01:24:14the emotional well-being of our children
- 01:24:17the importance of that
- 01:24:18cannot be understated um the need for
- 01:24:22attachment
- 01:24:23with our children can't can't be
- 01:24:25understated
- 01:24:26there's research about this um from
- 01:24:30uh people like oppenheim and um
- 01:24:33maybe singletary you know about the
- 01:24:36importance
- 01:24:36for uh caregivers to be attuned to their
- 01:24:40children's needs and to try to
- 01:24:42understand their children's perspectives
- 01:24:44um and so everything that you do mona is
- 01:24:48is aligned with not only the
- 01:24:51neuroscience but with best practices in
- 01:24:53all children's mental health and
- 01:24:55emotional well-being and i just
- 01:24:57so appreciate your voice and your
- 01:24:59knowledge
- 01:25:00and um i'm i'm really looking forward to
- 01:25:04being able to give some of your books
- 01:25:05away because i think it's such a
- 01:25:07valuable
- 01:25:08resource and same with your website um
- 01:25:12we'll link to that as well um and i'm
- 01:25:14just so happy you were here today thank
- 01:25:16you so much
- 01:25:17thank you so much your words are just
- 01:25:19fill my heart
- 01:25:20and thank you so much and you're right
- 01:25:23it's when i realized that these these
- 01:25:26standard best practices are
- 01:25:30what we demand for neurotypical children
- 01:25:35for all children look at the harvard
- 01:25:37center on the developing child
- 01:25:39it's it's what um neurons to
- 01:25:41neighborhoods
- 01:25:43set out as every child and then there's
- 01:25:46a update
- 01:25:47um call i think called raising healthy
- 01:25:51raising healthy children from from a
- 01:25:53huge panel that says all children
- 01:25:55deserve
- 01:25:56to grow up in loving
- 01:26:01supportive compassionate relationships
- 01:26:03and so
- 01:26:04we need to insist on that for our
- 01:26:06children who are who are on the spectrum
- 01:26:09and um and that's uh
- 01:26:12that's that's what's uh that's pretty
- 01:26:15cool that
- 01:26:15we're making that happen so thanks for
- 01:26:17having me take good care
- 01:26:19yeah thank you so much you too um and
- 01:26:21just one last note
- 01:26:22uh we have a webinar coming out
- 01:26:25next week in the next two weeks with the
- 01:26:28autistic women and non-binary network
- 01:26:30on whether virtual interactions are
- 01:26:32really accessible
- 01:26:34we also have dr christina nicolaitis
- 01:26:37coming back
- 01:26:38on november 12th i believe
- 01:26:41um on autistic adults in healthcare and
- 01:26:44then we have dr dora raymaker on
- 01:26:45november 19th
- 01:26:47um so we hope that you'll all join us
- 01:26:49again soon
- 01:26:50and thank you so much again um dr della
- 01:26:54hook
- 01:26:55thanks for having me take care thank you
- Autism
- Compassionate Care
- Neuroscience
- Child Psychology
- Sensory Processing
- Developmental Differences
- Behavioral Challenges
- Polyvagal Theory
- Emotional Regulation
- Child Development