Virtual SDGC20 | Sparking Change and Inspiring Patients

00:21:21
https://www.youtube.com/watch?v=-ly3Uyx6cB4

Summary

TLDRThe video introduces a conference session with Sarah Joseph Burke, a service designer with 15 years at the NHS. Sarah, now working at Love by Design, aims to share insights on positioning as a service designer in unaccustomed organizations. Her personal journey through cancer influenced her emphasis on patient-centered design, striving for co-production and collaboration within healthcare systems. Technical challenges arise during the conference, yet tools like 'Brella' provide avenues for virtual interaction similar to in-person conferences. Collaboration with patients and staff is underscored as essential for effective health services design.

Takeaways

  • 🎀 Sarah Joseph Burke shares insights from her 15-year service design career at NHS.
  • πŸ’Ό She discusses challenges of integrating service design in unfamiliar organizations.
  • πŸ’‘ Her cancer experience inspired a focus on patient-centered design.
  • πŸ› οΈ The 'Brella' tool facilitates virtual conference interactions.
  • πŸ“Š Emphasis on collaboration between staff and patients for effective design.
  • πŸŽ₯ Use of video to bring patient voices into the room remotely.
  • πŸ” Mapping entire patient journeys to improve service collaboration.
  • πŸ“š Created a toolkit for patient involvement accessible to NHS staff.
  • 🌟 Encourages a revolutionary mindset for systemic healthcare innovation.
  • 🀝 Importance of involving patients in the co-design process.

Timeline

  • 00:00:00 - 00:05:00

    The event begins with an introduction to the first speaker, Sarah Joseph Burke, a seasoned service designer from the NHS in the UK. The discussion is centered around managing the role of a service designer in organizations not accustomed to this practice. There is a delay in connecting with Sarah, leading to a Q&A among the hosts about the significance of design in organizations and the evolving landscape of service design over the last decade.

  • 00:05:00 - 00:10:00

    The hosts discuss the challenges of online conferences, particularly the lack of physical interaction, and express excitement about the potential of online tools to fill this gap. They encourage the audience to actively engage and make connections through the platform. Sarah is finally ready to join, overcoming technical difficulties, and she prepares to speak about her experiences.

  • 00:10:00 - 00:15:00

    Sarah begins her talk by sharing her journey from working in mental health to becoming a service designer, emphasizing the importance of understanding the whole person in service design. She recounts her personal experience with breast cancer, which shifted her perspective and deepened her empathy, driving her to improve patient experiences. She describes her initial idealism and the realization of systemic challenges within the NHS that limit transformative change.

  • 00:15:00 - 00:21:21

    Sarah discusses her revolutionary approach to integrating patient perspectives into service design. She shares strategies for effective patient collaboration and the difficulties encountered due to institutional structures. Emphasizing patient partnership, Sarah describes how involving patients led to a collaborative toolkit used within the NHS. Her message advocates for removing systemic barriers to effect meaningful change in healthcare through co-design and patient involvement.

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Mind Map

Video Q&A

  • Who is the first speaker at the conference?

    The first speaker is Sarah Joseph Burke, a service designer with 15 years of experience at the NHS.

  • What is Sarah Joseph Burke's presentation about?

    Her presentation is about managing positions as a service designer in organizations not used to working with service designers.

  • Where does Sarah Joseph Burke currently work?

    Sarah currently works at an agency called Love by Design in the UK.

  • What personal experience influenced Sarah Joseph Burke's career in service design?

    Being diagnosed with breast cancer in 2015 influenced her perspective, emphasizing the need for improving patient experience through service design.

  • What is a major challenge in service design mentioned in the talk?

    A major challenge is integrating design in organizations not accustomed to it and ensuring involvement from key stakeholders and patients.

  • What tool is anticipated to facilitate interactions at the online conference?

    The 'Brella' tool is anticipated to facilitate interactions at the online conference.

  • How long has the podcast mentioned in the video been running?

    The podcast has been running for almost five years.

  • What impact did Sarah Joseph Burke's medical experience have on her work?

    Her medical experience led her to realize the importance of patient-centered service design in healthcare.

  • Is there a toolkit mentioned in the talk?

    Yes, there is a toolkit for patient involvement designed to be accessible and usable by NHS teams.

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Subtitles
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  • 00:00:04
    i think you're all ready
  • 00:00:05
    for the first speaker
  • 00:00:09
    the first one is sarah joseph burke
  • 00:00:12
    and she's actually she has been a
  • 00:00:15
    service designer
  • 00:00:16
    for 15 years at the nhs the national
  • 00:00:19
    health service from the uk and she will
  • 00:00:23
    talk about
  • 00:00:24
    how you can manage your position as a
  • 00:00:27
    service designer
  • 00:00:28
    in an organization that is maybe not
  • 00:00:31
    used to
  • 00:00:32
    working with service designers so i'm
  • 00:00:34
    very curious about that
  • 00:00:36
    uh at the moment she's working at an
  • 00:00:39
    agency which is called love by design
  • 00:00:41
    also in the uk so i would be happy
  • 00:00:45
    to get her on stage if she
  • 00:00:48
    is ready for that as well
  • 00:00:53
    i'm seeing some messages in our
  • 00:00:56
    backstage chat that we are still looking
  • 00:00:59
    for her
  • 00:01:08
    yes i think we are still
  • 00:01:11
    trying to connect with her in our
  • 00:01:15
    backstage chat
  • 00:01:22
    okay shall we do a little q a with
  • 00:01:25
    herself david are there any
  • 00:01:29
    particular talks that you're looking
  • 00:01:31
    forward to today stina
  • 00:01:32
    yes i am actually the first one i'm
  • 00:01:35
    really interested in because i noticed
  • 00:01:37
    that we
  • 00:01:38
    are more and more also moving into
  • 00:01:42
    organizations that are maybe not used to
  • 00:01:46
    really implementing uh design in their
  • 00:01:50
    workflow and that we as service
  • 00:01:52
    designers get a very
  • 00:01:54
    important role in that they were often
  • 00:01:57
    training
  • 00:01:57
    um clients as well and i see a big
  • 00:02:01
    future for us so i'm super curious to
  • 00:02:04
    which struggles she had to overcome
  • 00:02:07
    and i'm sure we can learn from that yep
  • 00:02:10
    what about you um well one thing i am
  • 00:02:13
    looking forward to as well the
  • 00:02:14
    the ten years of uh service design jams
  • 00:02:17
    i think it shows
  • 00:02:18
    how much history there is to uh to
  • 00:02:20
    service design
  • 00:02:22
    um and i think it has evolved over the
  • 00:02:24
    years and i'm sure
  • 00:02:25
    marcus and adam will be able to tell us
  • 00:02:29
    a lot about
  • 00:02:30
    the evolution in the last 10 years um
  • 00:02:33
    let's have a
  • 00:02:34
    quick look to see if our speaker is
  • 00:02:36
    ready
  • 00:02:39
    sarah are you there
  • 00:02:43
    not yet okay
  • 00:02:52
    what are what do you think our biggest
  • 00:02:54
    challenges would be david
  • 00:02:56
    during this online um conference what
  • 00:02:59
    will you miss the most
  • 00:03:01
    compared to a live stream apart from the
  • 00:03:03
    challenge we we have at the moment
  • 00:03:05
    yeah i mean i think it's the the
  • 00:03:07
    interaction of course
  • 00:03:09
    um the chats in between when having
  • 00:03:11
    coffee but i'm also looking really
  • 00:03:12
    forward to how
  • 00:03:13
    the brella tool is gonna fill that that
  • 00:03:16
    hole
  • 00:03:17
    from a physical conference i've had my
  • 00:03:20
    first
  • 00:03:20
    uh requests already to to meet up
  • 00:03:23
    and to have chats um so i really look
  • 00:03:26
    forward to seeing how that works i think
  • 00:03:27
    it's interesting to have the
  • 00:03:29
    the one-on-one interaction through
  • 00:03:31
    brella which is something i really enjoy
  • 00:03:33
    at the real conferences
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    how about you yeah i also already got
  • 00:03:37
    some meeting
  • 00:03:38
    requests i didn't manage to uh to reply
  • 00:03:40
    them
  • 00:03:41
    yet but maybe it's something to
  • 00:03:43
    encourage to everyone
  • 00:03:45
    you can tell
  • 00:03:48
    people what you would like to talk about
  • 00:03:50
    using umbrella tool
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    and then please try to connect to people
  • 00:03:55
    that you maybe
  • 00:03:57
    haven't spoken to before can be a an
  • 00:04:00
    interesting uh
  • 00:04:01
    challenge for everyone to try at least
  • 00:04:03
    once
  • 00:04:04
    to uh to connect with someone indeed
  • 00:04:08
    so one way here i'm gonna take the
  • 00:04:11
    opportunity to also say thank you to the
  • 00:04:13
    entire organization team
  • 00:04:16
    especially jasmine i know you've done a
  • 00:04:19
    lot of work to
  • 00:04:20
    get us online here at the same time all
  • 00:04:23
    interacting with each other i think
  • 00:04:26
    that's a good
  • 00:04:27
    great job and thank you very much for
  • 00:04:29
    that
  • 00:04:32
    have a quick peek still some technical
  • 00:04:36
    issues going on
  • 00:04:38
    on her end maybe already a question to
  • 00:04:42
    the audience
  • 00:04:43
    uh who dares to use the q a
  • 00:04:46
    section first how about immediately
  • 00:04:49
    asking us
  • 00:04:50
    a question and then we can see how it
  • 00:04:53
    will
  • 00:04:54
    work for the talks the upcoming talks
  • 00:04:57
    yes
  • 00:04:57
    what is a question you want to ask the
  • 00:04:59
    service design community at large
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    i think one interesting question from my
  • 00:05:14
    end is
  • 00:05:14
    yeah the interacting with people
  • 00:05:17
    physically is so
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    important in service design and
  • 00:05:20
    communicating bringing people together
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    um we're seeing that it works really
  • 00:05:26
    well
  • 00:05:26
    using online tools like miro and mural
  • 00:05:30
    um i'm wondering what are your
  • 00:05:33
    wonderful insights what's working better
  • 00:05:35
    today than it was
  • 00:05:38
    before the the online days
  • 00:05:43
    oh i see some questions popping up
  • 00:05:47
    the first one is how long have you been
  • 00:05:49
    doing the podcast
  • 00:05:52
    that's been almost five years i think by
  • 00:05:54
    now
  • 00:05:55
    yeah is it yes and we've been
  • 00:05:59
    i think almost at five conferences uh
  • 00:06:01
    walking around with our microphones
  • 00:06:03
    so it's been some time always the most
  • 00:06:06
    most frequent but
  • 00:06:08
    it's been five years yeah
  • 00:06:11
    i see a another question what metrics
  • 00:06:15
    outcomes are important to senior leaders
  • 00:06:18
    from service designers who i think
  • 00:06:21
    that's the question we need to ask
  • 00:06:23
    the speaker
  • 00:06:26
    interesting question i also see some of
  • 00:06:28
    you found the upvoting
  • 00:06:30
    function which is really nice could we
  • 00:06:33
    have can have this uh
  • 00:06:35
    test before the real talk
  • 00:06:41
    any other questions coming in stina
  • 00:06:45
    let me check
  • 00:06:56
    we have
  • 00:07:00
    people asking what chances are we will
  • 00:07:03
    be having
  • 00:07:04
    um live conference in denmark
  • 00:07:08
    next year let's hope we can
  • 00:07:11
    i think yeah if we all work hard at the
  • 00:07:14
    moment and
  • 00:07:16
    keep things from escalating
  • 00:07:20
    that's very hopeful that the conference
  • 00:07:22
    can go on indeed
  • 00:07:30
    i see also a question
  • 00:07:34
    which is about any tips for students who
  • 00:07:37
    are
  • 00:07:37
    here i think it's great if you manage to
  • 00:07:39
    join as a student
  • 00:07:42
    one tip for students if you don't know
  • 00:07:44
    them yet but maybe for
  • 00:07:45
    everyone as well in the community is to
  • 00:07:49
    check if there are any local chapters in
  • 00:07:52
    your neighborhood people who will be
  • 00:07:55
    organizing
  • 00:07:56
    events we also host the belgian one
  • 00:08:00
    together with some other agencies
  • 00:08:02
    and i can say there that there's always
  • 00:08:04
    some
  • 00:08:05
    super interesting um
  • 00:08:08
    interactions going on i see that
  • 00:08:11
    our speaker is there so sarah people
  • 00:08:14
    around the world
  • 00:08:15
    give a big round of applause for sarah
  • 00:08:19
    welcome sarah thank you guys i'm really
  • 00:08:22
    sorry i mean australia in a quarantine
  • 00:08:25
    hotel as we
  • 00:08:26
    speak i've had no sleep so please excuse
  • 00:08:29
    me as i share
  • 00:08:30
    my slides with you
  • 00:08:42
    on this one okay
  • 00:08:50
    sorry so can everybody see
  • 00:08:59
    i'll just keep going yeah good thank you
  • 00:09:02
    for letting me know
  • 00:09:04
    um so i wanted to call this talk
  • 00:09:08
    um really very much um
  • 00:09:11
    patience inspiring me and sparking
  • 00:09:14
    change
  • 00:09:14
    in me and i'll preface the talk by
  • 00:09:16
    saying that
  • 00:09:18
    essentially i'm not with the nhs anymore
  • 00:09:20
    and that this is all
  • 00:09:22
    just my observations and my work within
  • 00:09:25
    this particular setting so to introduce
  • 00:09:28
    myself
  • 00:09:30
    my name is sarah and before i became a
  • 00:09:33
    service designer
  • 00:09:34
    i worked in mental health for about 15
  • 00:09:37
    years
  • 00:09:38
    and this was really really important for
  • 00:09:40
    me because what it did was
  • 00:09:42
    it enabled me to work with the whole
  • 00:09:45
    person
  • 00:09:46
    and really know how important that
  • 00:09:48
    person was to any kind
  • 00:09:50
    of change process so as an occupational
  • 00:09:53
    therapist you were never just
  • 00:09:54
    interested in one thing and people were
  • 00:09:57
    really complicated and that gave me a
  • 00:09:59
    real
  • 00:09:59
    interest in how we could make services
  • 00:10:02
    better that would meet their needs
  • 00:10:05
    and then what happened was in 2015 i was
  • 00:10:08
    diagnosed with breast cancer
  • 00:10:10
    and i share this slide because this was
  • 00:10:12
    so important in my life
  • 00:10:14
    because this was a time when for the
  • 00:10:16
    first time i needed
  • 00:10:18
    all those parts of the service to work
  • 00:10:19
    for me and i had never been a patient in
  • 00:10:22
    this way before
  • 00:10:23
    and really that was a fundamental shift
  • 00:10:25
    that put me on the other side of an
  • 00:10:27
    experience
  • 00:10:29
    um and i think yeah was really important
  • 00:10:32
    in building empathy and connecting
  • 00:10:34
    so i came back to london and i saw
  • 00:10:38
    i started to sort of think about service
  • 00:10:40
    design i started to think about how
  • 00:10:42
    could i use my experience
  • 00:10:44
    to help make things better for people
  • 00:10:47
    and i came across this role
  • 00:10:49
    as a macmillan patient experience and
  • 00:10:52
    user involvement lead and i thought
  • 00:10:54
    that's great
  • 00:10:55
    i'm gonna do co-production and co-design
  • 00:10:58
    and be the service designer i want to be
  • 00:11:01
    i started a masters i was like
  • 00:11:03
    ready to sort of change the world
  • 00:11:07
    but i think the thing that i came across
  • 00:11:09
    when i
  • 00:11:10
    was part of the nhs was very much
  • 00:11:14
    um that the way that it works is that
  • 00:11:17
    we're all kind of
  • 00:11:18
    trying to hold the system up and stop it
  • 00:11:21
    from failing
  • 00:11:22
    and we're really busy just doing this
  • 00:11:24
    and sometimes we're pushing against each
  • 00:11:26
    other
  • 00:11:26
    and it's it's takes so much momentum to
  • 00:11:29
    keep
  • 00:11:30
    things going within the nhs that
  • 00:11:32
    sometimes it's quite difficult
  • 00:11:34
    to be transformational or have this
  • 00:11:36
    change
  • 00:11:37
    or work with patients in the way
  • 00:11:39
    sometimes we'd like to
  • 00:11:44
    so i'd like to introduce you to business
  • 00:11:47
    as usual
  • 00:11:48
    with covered masks so
  • 00:11:52
    essentially every year there's a
  • 00:11:55
    there's a need for patient information
  • 00:11:57
    and the best
  • 00:11:58
    format we have for that currently that
  • 00:12:00
    exists still
  • 00:12:01
    even to this day is leaflets so
  • 00:12:04
    you'll get an a sort of top-down thing
  • 00:12:07
    about patient information
  • 00:12:08
    and then what will happen is a nurse who
  • 00:12:11
    maybe doesn't have
  • 00:12:13
    design skills doesn't really do graphic
  • 00:12:15
    design will be charged with
  • 00:12:17
    you know getting some patients together
  • 00:12:19
    and really kind of like reviewing this
  • 00:12:21
    leaflet and making it the best leaflet
  • 00:12:24
    it can be
  • 00:12:25
    so the question becomes do you like it
  • 00:12:28
    does it make sense you might sense check
  • 00:12:30
    it with patience
  • 00:12:31
    and you'll get people in or now probably
  • 00:12:34
    via email
  • 00:12:35
    you'll get whoever you can and you'll
  • 00:12:37
    try and find the right people to review
  • 00:12:39
    it
  • 00:12:39
    but the thing is there's a time pressure
  • 00:12:41
    on this and you need to get it done
  • 00:12:44
    and so what ends up happening inevitably
  • 00:12:47
    is we've made the best leaflet we could
  • 00:12:50
    make
  • 00:12:51
    but it's not really addressing the
  • 00:12:53
    underlying needs of the patient
  • 00:12:55
    and we didn't have really the space or
  • 00:12:57
    room to go there
  • 00:12:58
    so we did the best we could and the
  • 00:13:01
    issue with this is that ultimately the
  • 00:13:04
    system
  • 00:13:05
    then produces a result that doesn't
  • 00:13:08
    necessarily
  • 00:13:09
    lead to a really great patient
  • 00:13:11
    experience or improved satisfaction with
  • 00:13:13
    the service
  • 00:13:15
    we've made the leaflet the goal has been
  • 00:13:17
    achieved but have we actually done
  • 00:13:19
    something
  • 00:13:20
    that really has an impact
  • 00:13:23
    so we all know the answer to the
  • 00:13:25
    question and the answer is
  • 00:13:28
    the ideal state is putting the patient
  • 00:13:31
    in the center of everything we do
  • 00:13:33
    and trying to make these meaningful
  • 00:13:36
    opportunities
  • 00:13:37
    to exist for them so that we're able to
  • 00:13:39
    kind of work with them
  • 00:13:41
    and really work together to create this
  • 00:13:43
    change
  • 00:13:44
    so why or what sort of stops it from
  • 00:13:46
    happening like i know people really want
  • 00:13:49
    to
  • 00:13:49
    and the desire is there and everyone's
  • 00:13:51
    doing the best they can
  • 00:13:53
    so one of the issues is that patient
  • 00:13:56
    x needs to fit inside our nhs box and by
  • 00:14:00
    that i'm talking about a system i'm not
  • 00:14:02
    even just talking about
  • 00:14:04
    you know the structures we have in place
  • 00:14:06
    the things that kind of
  • 00:14:08
    are holding people and the roles that
  • 00:14:09
    we've created for patients
  • 00:14:11
    so if something is running from nine to
  • 00:14:14
    five that might be difficult
  • 00:14:16
    for someone else to get to we may have
  • 00:14:18
    another opportunity on a project but
  • 00:14:20
    it's very much
  • 00:14:21
    measured by what what we get told to do
  • 00:14:25
    and what a patient needs to sort of fit
  • 00:14:27
    into when we try our best to make that
  • 00:14:30
    work
  • 00:14:32
    so when it came to staff and people
  • 00:14:35
    wanting to do
  • 00:14:37
    beyond just getting feedback to actually
  • 00:14:40
    do co-production
  • 00:14:41
    they'd say it's a good idea we should i
  • 00:14:44
    certainly would like to do it
  • 00:14:46
    but i couldn't do it right now and that
  • 00:14:48
    was you know due to a lack of time
  • 00:14:50
    skills confidence
  • 00:14:52
    lots of things just not having had that
  • 00:14:54
    input and training
  • 00:14:56
    so my question became how might we
  • 00:14:58
    support better collaboration between
  • 00:15:00
    staff
  • 00:15:01
    and cancer patients and i really thought
  • 00:15:04
    this was quite radical and i wanted to
  • 00:15:07
    be a revolutionary
  • 00:15:09
    so my question became how can you start
  • 00:15:11
    a revolution on the inside and
  • 00:15:13
    it was by doing things like believing
  • 00:15:16
    that each project i did
  • 00:15:18
    had to sort of be a mini revolution and
  • 00:15:20
    had to bring people along
  • 00:15:22
    and really kind of involve them as much
  • 00:15:24
    as possible in that process
  • 00:15:27
    in order to get their trust and in order
  • 00:15:29
    to sort of try something different
  • 00:15:31
    which wasn't currently happening and my
  • 00:15:34
    secret weapon in the fight
  • 00:15:37
    is emma and patients like emma who was
  • 00:15:40
    a cancer patient he is a cancer patient
  • 00:15:42
    user researcher
  • 00:15:43
    and in my opinion an all-round superhero
  • 00:15:47
    so um emma had i'm just going to go to
  • 00:15:51
    my other screen because basically emma
  • 00:15:53
    reflected on some of her
  • 00:15:56
    on some of her journey and i think
  • 00:15:57
    that's really important
  • 00:15:59
    um so i'm going to quote emma when i'm
  • 00:16:01
    reading this out because these are her
  • 00:16:03
    words i think they're important
  • 00:16:05
    i'd never done anything liked it before
  • 00:16:07
    or worked in the nhs
  • 00:16:09
    in any capacity i was hearing about
  • 00:16:11
    acronyms
  • 00:16:12
    steering groups and boards that i hadn't
  • 00:16:14
    the foggiest
  • 00:16:16
    and would just nod along so it was quite
  • 00:16:18
    nerve-wracking but also exciting
  • 00:16:20
    especially watching the map go from a
  • 00:16:22
    template to a real thing
  • 00:16:24
    and slowly fill up describing it to
  • 00:16:27
    patients and their support net
  • 00:16:29
    systems as a means of getting direct
  • 00:16:31
    feedback
  • 00:16:32
    and improving involvement of young
  • 00:16:34
    people was what convinced
  • 00:16:36
    those who are unsure to take a look and
  • 00:16:38
    give their feedback
  • 00:16:40
    it showed me just how much people wanted
  • 00:16:42
    to help the nhs
  • 00:16:43
    and future patients finding out that i
  • 00:16:46
    was one of them had a similar effect on
  • 00:16:49
    encouraging them
  • 00:16:50
    to take part
  • 00:16:55
    so on reflection emma did begin the
  • 00:16:59
    workshops feeling overwhelmed like an
  • 00:17:01
    imposter
  • 00:17:02
    and we did have a lot of conversations
  • 00:17:04
    and i will say we were learning on the
  • 00:17:06
    job
  • 00:17:07
    i this role had been created as a
  • 00:17:09
    service
  • 00:17:10
    to be a sort of a user researcher
  • 00:17:12
    specifically for her where a role did
  • 00:17:14
    not
  • 00:17:15
    exist and sort of trying to figure out
  • 00:17:17
    what support was needed and the
  • 00:17:18
    expectations was really important
  • 00:17:21
    when doing co-design or when bringing
  • 00:17:23
    emma in to co-facilitate and do things
  • 00:17:25
    we also had to address the power dynamic
  • 00:17:27
    we had to talk about what i was what she
  • 00:17:30
    was like what we all brought
  • 00:17:32
    and i think that made it easier and she
  • 00:17:34
    did tell me that she felt
  • 00:17:36
    safe speaking to me about stuff because
  • 00:17:38
    in a way i had that lived experience
  • 00:17:40
    so she could feel like i would get it if
  • 00:17:43
    she said she was tired because we both
  • 00:17:45
    knew what chemo tired meant
  • 00:17:47
    so i'm going to talk through some
  • 00:17:49
    strategies that worked
  • 00:17:52
    and what i think about service design
  • 00:17:54
    tools and the magic that they can
  • 00:17:55
    actually help
  • 00:17:56
    create in terms of flattening things and
  • 00:17:59
    helping people to get involved
  • 00:18:01
    so i truly believe that it's a mentality
  • 00:18:05
    that patients our partners and patients
  • 00:18:07
    are the boss
  • 00:18:08
    that if we think of people like that we
  • 00:18:10
    treat them with deference and we ask and
  • 00:18:12
    we involve and we get feedback and input
  • 00:18:15
    i there were some examples of this
  • 00:18:17
    through things we did so at one point i
  • 00:18:20
    was working with a patient
  • 00:18:21
    who could no longer communicate but was
  • 00:18:23
    so involved in the project
  • 00:18:25
    and it was his lifeline so what we did
  • 00:18:27
    when we were creating this
  • 00:18:28
    toolkit for the service was you know
  • 00:18:31
    made sure i had a weekly catch-up with
  • 00:18:33
    him
  • 00:18:34
    we had a comment section in a google
  • 00:18:35
    slide that we did together
  • 00:18:37
    and i always made sure that i brought
  • 00:18:38
    him in and kept involving him
  • 00:18:40
    in whatever capacity he could be the
  • 00:18:43
    other part of that is
  • 00:18:45
    something i started doing with around
  • 00:18:47
    patient transcripts called ipa
  • 00:18:49
    which is interpretive for
  • 00:18:51
    phenomenological anal
  • 00:18:53
    analysis not a beer so basically ipa is
  • 00:18:56
    great because what you do
  • 00:18:58
    is you look at a transcript that you've
  • 00:19:00
    got and i would give it back to patients
  • 00:19:02
    and i'd say is there anything missing
  • 00:19:04
    from this story
  • 00:19:05
    did i get it down right is this what you
  • 00:19:07
    do and
  • 00:19:08
    something really powerful started
  • 00:19:10
    happening when people were reading their
  • 00:19:12
    stories and giving me feedback actually
  • 00:19:14
    no sarah
  • 00:19:15
    i think this is the main point that was
  • 00:19:17
    really important to me in all of this
  • 00:19:18
    or it was really amazing reading myself
  • 00:19:21
    back
  • 00:19:22
    in this way it felt really powerful like
  • 00:19:24
    people could put something in a place
  • 00:19:27
    always bring patients into the room
  • 00:19:30
    so video is really important especially
  • 00:19:33
    now in times of covert
  • 00:19:35
    it's so important to just make sure that
  • 00:19:37
    the patient can always be there
  • 00:19:39
    even if they can't physically be there
  • 00:19:41
    you can bring them in
  • 00:19:42
    discovery workshops i said co-design
  • 00:19:45
    them deliver them with patients
  • 00:19:47
    alongside you and give people the chance
  • 00:19:50
    to lead and also
  • 00:19:52
    really important for siloed
  • 00:19:53
    organizations is to map out an entire
  • 00:19:56
    journey which
  • 00:19:57
    people don't only know their section of
  • 00:19:59
    the journey and they don't often know
  • 00:20:01
    what those problems are and it's great
  • 00:20:03
    when patients and staff both see sort of
  • 00:20:06
    similar experiences or similar needs
  • 00:20:09
    it's really great for collaboration
  • 00:20:11
    so in the end what came out of this was
  • 00:20:14
    our patient
  • 00:20:15
    collaboration toolkit which we
  • 00:20:18
    created and put up on the nhs system so
  • 00:20:21
    it can be accessed and used
  • 00:20:23
    by other nhs patient involvement teams
  • 00:20:26
    and what's great is it's in a language
  • 00:20:29
    and a way
  • 00:20:29
    and was co-designed with staff and
  • 00:20:32
    patients
  • 00:20:33
    so it makes sense to them and can be
  • 00:20:36
    changed and altered by others
  • 00:20:38
    and finally i ask that you all
  • 00:20:42
    maybe get rid of the box altogether like
  • 00:20:45
    my dream for this future
  • 00:20:47
    in terms of sparking changes that you
  • 00:20:49
    know we move from assets to action
  • 00:20:51
    and that we become revolutionaries and
  • 00:20:54
    find ways to remove these boxes because
  • 00:20:57
    that is the way the system will change
  • 00:20:58
    and i really believe that's
  • 00:21:00
    how we move forward and finally how we
  • 00:21:02
    spark change
  • 00:21:04
    thank you
  • 00:21:09
    that's for later thank you uh sarah that
  • 00:21:12
    was a
  • 00:21:12
    really interesting and look forward to
  • 00:21:14
    asking you questions about this
  • 00:21:16
    in the q a
Tags
  • Service Design
  • NHS
  • Healthcare
  • Patient Experience
  • Co-production
  • Collaboration
  • Conference
  • Virtual Interaction
  • Brella Tool
  • Sarah Joseph Burke