The Man With The Seven Second Memory
Resumen
TLDRThe video offers a glimpse into the life of Clive Wearing, who developed severe amnesia following a viral brain infection in 1985. As a result, Clive can only remember things for about seven seconds before forgetting them again, creating a challenging living situation where each moment feels like waking up for the first time. Despite this profound memory loss, Clive's musical abilities remain unaffected, and he continues to play and respond to music excellently. The documentary highlights his relationship with his wife, Deborah, who he still recognizes amidst his memory troubles. Her role is significant as she visits him regularly, and despite living separately, they uphold a strong emotional bond. The story shares Clive's struggles and emotional state, his daily life in a supervised care unit, interactions with his family, and insights into his past, illustrating both the challenges and the enduring aspects of human connections amidst adversity.
Para llevar
- 🎶 Clive retains musical skills despite memory loss.
- 🧠 His amnesia was caused by a viral infection destroying key brain parts.
- ❤️ Clive's strongest bond is with his wife, Deborah.
- ⏳ His consciousness resets every seven seconds.
- 📒 He keeps a diary to track 'first awakenings.'
- 🏥 Clive lives in a supervised brain injury unit.
- 💔 The illness profoundly impacted family dynamics.
- 🎹 He once was a notable conductor and musician.
- 📚 Clive's memory of past events is wiped.
- 🔄 Despite challenges, Clive's spirit and humor endure.
Cronología
- 00:00:00 - 00:05:00
Clive Wearing suffers from severe amnesia with only a seven-second memory span after a virus destroyed parts of his brain in 1985. Despite the memory loss, his musical ability remains.
- 00:05:00 - 00:10:00
Clive is continuously surprised by things happening around him, unaware of his fame due to a documentary. He resides in a brain injury unit and retains his identity but struggles with basic life details. His wife Deborah lives separately but continues to visit him.
- 00:10:00 - 00:15:00
Despite severe memory impairment, Clive retains an innate musical ability. His wife describes him as passionate and loving, maintaining a deep connection based on recognition rather than memory.
- 00:15:00 - 00:20:00
Clive's amnesia began with flu-like symptoms, escalating into brain damage caused by the herpes simplex virus. Lost and disoriented, he was eventually found and diagnosed with encephalitis.
- 00:20:00 - 00:25:00
Doctors initially misdiagnosed Clive with flu, leading to a delayed intervention. When properly diagnosed, the viral attack had already caused irreversible brain damage, compromising his hippocampus.
- 00:25:00 - 00:30:00
Clive's amnesia leads him to constantly forget those around him, including family. Despite glimpses of recognition, his memory resets every few moments, leaving him trapped in a perpetual present.
- 00:30:00 - 00:35:00
Alongside tangible plans to care for Clive, Deborah explores life away from him, but remains tethered by emotional bonds. Even in America, she couldn't escape the pull back to Clive, struggling with the void left by his memory loss.
- 00:35:00 - 00:40:00
Deborah undergoes personal transformation and returns to the UK. Her renewed faith fills the emptiness left by Clive’s condition. She seeks solace in acts of service and rekindles a spiritual bond with Clive.
- 00:40:00 - 00:48:00
Family and friends mention Clive's intellectual past, noting the profound impact of his condition. While his aggressive episodes reduced, Clive's blank state remains unchanged, leaving an indelible mark on those around him.
Mapa mental
Preguntas frecuentes
Who is Clive Wearing?
Clive Wearing was a renowned conductor who suffers from severe amnesia caused by a viral infection in 1985.
What impact did the virus have on Clive's brain?
The virus destroyed Clive's hippocampus, causing dense amnesia and preventing him from forming new memories.
Can Clive still play music?
Yes, despite his memory loss, Clive retains his innate musical abilities and can still play music.
How long is Clive's memory span?
Clive's memory resets approximately every seven seconds, leaving him unaware of what happened moments before.
Who does Clive recognize?
The only person Clive consistently recognizes is his wife, Deborah.
How has Clive's condition affected his family?
Clive's condition has put a significant emotional strain on his family, complicating relationships and daily interactions.
Does Clive remember his past before the illness?
Clive lacks memories of life events before the illness but retains fundamental knowledge, like facts about his career.
What is Clive's emotional state regarding his condition?
Clive describes his mental state as similar to being dead, with no dreams or thoughts, yet he remains emotionally connected to music and his wife.
How does Clive keep track of time?
Clive uses a diary to record his repeated ‘first awakenings’ in an attempt to understand the passing of time.
What role does Deborah play in Clive's life?
Deborah is a crucial support figure, visiting him regularly and maintaining a loving relationship despite challenging circumstances.
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- 00:00:00(upbeat music)
- 00:00:21(bright piano music)
- 00:00:27- [Interviewer] Clive Wearing has one of the worst cases
- 00:00:29of amnesia in the world.
- 00:00:32(bright piano music)
- 00:00:39- I know what it's like to be dead now.
- 00:00:41Day and night, the same thing.
- 00:00:43No difference between dreams or anything like that.
- 00:00:45No sense at all.
- 00:00:46The brain has been totally inactive.
- 00:00:48No dreams, no thoughts of any kind whatever.
- 00:00:51(somber music)
- 00:00:52- [Interviewer] Clive was a renowned conductor
- 00:00:54living in London when he was struck down by a virus in 1985.
- 00:00:59Parts of his brain were completely destroyed,
- 00:01:01including his memory.
- 00:01:03However, his ability to play music is unaffected.
- 00:01:07Do you feel different when you play music?
- 00:01:10- I've never heard a note since I've been ill.
- 00:01:11I don't know what it's like to play music,
- 00:01:14when you're unconscious.
- 00:01:15- [Interviewer] You played us some music
- 00:01:16about two minutes ago.
- 00:01:18- Not known to me.
- 00:01:20Totally unknown.
- 00:01:21I've never heard a note yet.
- 00:01:22(somber music continues)
- 00:01:26- [Interviewer] Clive's case became known to millions
- 00:01:28when a television documentary was made about him in 1986.
- 00:01:33Alone and confused in hospital, without his memory,
- 00:01:37the only person he recognized was his wife, Deborah.
- 00:01:41- What's been wrong?
- 00:01:42Can you just be honest with me?
- 00:01:44You know, I really can't go through this.
- 00:01:45- But, I- - I'm actually conscious now
- 00:01:46for the first time. - Yes.
- 00:01:47- I just want to find out what the bloody hell
- 00:01:48they've been doing, what's been wrong with me.
- 00:01:50There isn't a fucking clue.
- 00:01:51- Well, this is- - Never seen anyone at all.
- 00:01:53(somber music)
- 00:01:56- [Interviewer] 20 years later,
- 00:01:58Clive only has a seven-second memory
- 00:02:00before his mind goes blank.
- 00:02:02What has life been like for Clive and his family?
- 00:02:07(metal clangs)
- 00:02:09(clock ticking) (somber music)
- 00:02:16Do you know that we're making
- 00:02:17a film about you?
- 00:02:18- No, that's news to me.
- 00:02:21- [Interviewer] You're being filmed
- 00:02:22for a television program.
- 00:02:23- Oh no! (chuckles)
- 00:02:25Oh dear.
- 00:02:26I feel a bit posh, do I? Upper class.
- 00:02:29- [Interviewer] Because you're very famous.
- 00:02:30- (laughs) A likely story.
- 00:02:33You're full of jokes, aren't you?
- 00:02:33Are you two laughing as well?
- 00:02:36- [Interviewer] About 20 years ago,
- 00:02:38a film was made about you.
- 00:02:39- Oh no.
- 00:02:40- [Interviewer] Just after you became ill,
- 00:02:42called "A Prisoner of Consciousness,"
- 00:02:45and 20 years on we're making a new film about you
- 00:02:48because millions of people watched the film
- 00:02:51and wanted to know how you were.
- 00:02:52- Good heavens.
- 00:02:53- [Interviewer] So millions of people know you.
- 00:02:57- How embarrassing. (chuckles)
- 00:03:01They know too much about me now, don't they? (laughs)
- 00:03:04- [Interviewer] And we've been coming to see you
- 00:03:06for several weeks.
- 00:03:07- I see.
- 00:03:08Are you paid to come here?
- 00:03:10- [Interviewer] Thankfully we are.
- 00:03:11- (laughs) Hooray!
- 00:03:14One, two, three, four.
- 00:03:16♪ Mad dogs and Englishmen go out in the midday sun ♪
- 00:03:20♪ Those Japanese don't care ♪
- 00:03:21- [Interviewer] Clive is 67 and lives in a brain injury unit
- 00:03:25where he's under constant supervision.
- 00:03:28♪ But Englishmen, they test us ♪
- 00:03:30♪ Yes, sir ♪
- 00:03:32His wife Deborah
- 00:03:33lives 85 miles away in Reading.
- 00:03:36His illness has made it impossible
- 00:03:37for them to live together for 20 years.
- 00:03:40♪ At 12 noon the natives swoon and no further work is done ♪
- 00:03:43♪ But mad dogs and Englishmen go out in the midday sun ♪
- 00:03:49- Very good, Mr. Wearing. (attendant clapping)
- 00:03:52- If Clive went out of the front door,
- 00:03:55unsupervised, unaccompanied it would be like
- 00:04:02being separated from a spaceship.
- 00:04:04It would be like, if you were spacewalking
- 00:04:06and the rope broke.
- 00:04:07He would have no way of getting back ever.
- 00:04:12- [Interviewer] Does Clive know his name?
- 00:04:13- Yes.
- 00:04:14- [Interviewer] Does he know how old he is?
- 00:04:15- No.
- 00:04:16- [Interviewer] Does he know where you live?
- 00:04:18- [Deborah] No. No idea.
- 00:04:20- [Interviewer] Does he know your job?
- 00:04:21- [Deborah] No. No idea.
- 00:04:22- [Interviewer] Does he know the day of the week?
- 00:04:25- No.
- 00:04:26- [Interviewer] Does he know the date?
- 00:04:27- No.
- 00:04:29- [Interviewer] Can he read a book?
- 00:04:30- No, 'cause he can't remember the sentence before last.
- 00:04:34- [Interviewer] Can he watch a film?
- 00:04:35- No.
- 00:04:36He'll watch the rugby or he'll watch the crickets.
- 00:04:39He won't know who's playing or what the score is,
- 00:04:42but each stroke and each try is satisfying for him to watch.
- 00:04:48(dramatic music)
- 00:04:51- [Woman] Coming.
- 00:04:57- [Interviewer] Clive now has islands of memory.
- 00:05:00Just as we can ride a bike or drive a car
- 00:05:02without remembering how we were taught,
- 00:05:04Clive can play and respond to music
- 00:05:06because his innate musical abilities are still there
- 00:05:10and weren't totally destroyed by the virus.
- 00:05:13(bright orchestral music)
- 00:05:17Deborah visits Clive on average once a month.
- 00:05:22What sort of man is he?
- 00:05:24- Passionate, very loving.
- 00:05:26Funny, very, very comical.
- 00:05:29And he's very, very, self-effacing.
- 00:05:32He doesn't want to be a nuisance to anyone.
- 00:05:35He often apologizes to me and says,
- 00:05:37"I must have been such a nuisance to you.
- 00:05:39I'm so sorry."
- 00:05:40I mean (sighs).
- 00:05:43- They told me you were arriving. (laughs)
- 00:05:46Welcome to Earth.
- 00:05:49- He knows me.
- 00:05:51Delicious. - Oh!
- 00:05:51- He might not remember anything about me, but he knows me.
- 00:05:55So he knows what I'm like.
- 00:05:57And we're still very much a team.
- 00:06:00I mean, it sounds odd when we see so little of each other,
- 00:06:02but we are very much a team.
- 00:06:05- Come on.
- 00:06:07No hanging around on the other side of the room.
- 00:06:09- Aw, thank you, darling.
- 00:06:11- [Interviewer] What does it mean to you
- 00:06:12when Deborah comes to visit?
- 00:06:15- [Clive] Heaven on Earth arrives.
- 00:06:17- [Interviewer] And what does it mean to you
- 00:06:18when Deborah can't come and visit?
- 00:06:20- Well, I don't know.
- 00:06:21I haven't been conscious since I've been ill.
- 00:06:23I don't know what I've been thinking when she's not here.
- 00:06:25I'd never seen her before either.
- 00:06:27Never heard a word. - You see me now?
- 00:06:28- Yes.
- 00:06:29I've never seen any human beings since I've been ill.
- 00:06:31You're the first four people I've seen in, what, 30 years?
- 00:06:34And if you're unconscious, you don't like it much, do you?
- 00:06:37- [Interviewer] What does being unconscious mean?
- 00:06:40- [Clive] Same as death.
- 00:06:42No difference between day and night.
- 00:06:43No thoughts at all.
- 00:06:45Day and night the same.
- 00:06:47- [Interviewer] And what does love mean, Mr. Wearing?
- 00:06:50- Zero intentness and everything in life.
- 00:06:53- Good answer.
- 00:06:55(Clive chuckles) Good answer.
- 00:06:57- That's what it's about, love, isn't it? Everything.
- 00:07:00- [Interviewer] Clive became ill
- 00:07:01before he and Deborah could start a family,
- 00:07:04but Clive has three children from his first marriage.
- 00:07:08- I thought of my father as a wonderful person.
- 00:07:11Mostly absent because my parents split up
- 00:07:14when I was very young.
- 00:07:16But when I did see him, he was always very jolly,
- 00:07:20very giving, always laughing
- 00:07:22and we all missed him.
- 00:07:25- Never dared to ask him what my name is.
- 00:07:27I don't know if that's my fear for him
- 00:07:30or my fear for myself. (chuckles)
- 00:07:32I've never asked him what my name is.
- 00:07:35He knows I'm his son.
- 00:07:36And he'll always say, "Well, you should be this tall
- 00:07:38'cause he left home when I was that tall."
- 00:07:42- [Clive] I can hear music in the distance.
- 00:07:45- [Interviewer] What music can you hear?
- 00:07:47(Clive vocalizing)
- 00:07:53Since his illness, Clive has auditory hallucinations.
- 00:08:01- What I struggle with the most
- 00:08:03is that the intellectual Colossus that was my father
- 00:08:08is reduced to making word games out of card number plates.
- 00:08:13It's just there's a tiny fraction of him left now.
- 00:08:17(singing in foreign language)
- 00:08:23- [Interviewer] 20 years ago,
- 00:08:24Clive was a well-known musician,
- 00:08:26conductor, and early music producer for Radio 3.
- 00:08:30(singing in foreign language)
- 00:08:32- He was a very charismatic conductor.
- 00:08:34He was working in a field
- 00:08:37that was just cutting new ground all the time.
- 00:08:42He would transcribe from original manuscripts
- 00:08:45and recreate the music for a particular meal
- 00:08:49that the Duke of Bavaria had with his mother-in-law
- 00:08:53and what they wore and what they had to eat
- 00:08:55and this was the music,
- 00:08:56and then he would make a radio program.
- 00:09:01It took all his energy.
- 00:09:02There wasn't much time to sleep.
- 00:09:03There were no weekends.
- 00:09:05He poured his whole being into his work.
- 00:09:08Everybody used to say to him, "Clive, slow down."
- 00:09:15He couldn't.
- 00:09:19- [Interviewer] No one had any idea
- 00:09:21that Clive was about to become one
- 00:09:23of the most extreme cases of amnesia in the world.
- 00:09:29(dramatic music)
- 00:09:33Clive's descent into brain damage
- 00:09:35came frighteningly quickly one week in March 1985
- 00:09:39when he came home from work looking flushed and feverish.
- 00:09:43On Saturday his headache started.
- 00:09:46By Tuesday he was no better and he hadn't slept.
- 00:09:50His temperature was 102.
- 00:09:52By Wednesday he was very confused
- 00:09:54and couldn't remember Deborah's name.
- 00:09:56His temperature was 104.
- 00:09:59Doctors came and went and Deborah left him sleeping.
- 00:10:03But when she came home,
- 00:10:04Clive had disappeared from their flat.
- 00:10:07- I called his name. There was no reply.
- 00:10:10I went into the bedroom, the bed was empty.
- 00:10:14And I knew something terrible had happened.
- 00:10:18- [Interviewer] Over the next few hours,
- 00:10:19Deborah rang hospitals and police stations across London.
- 00:10:23No one had seen Clive.
- 00:10:25(suspenseful music)
- 00:10:27- And we sat and we sat and we sat,
- 00:10:29and then a man's voice, the phone rang,
- 00:10:32and the man's voice said, "Are you Mrs. Wearing?"
- 00:10:36"Yes."
- 00:10:38"We've got your husband."
- 00:10:40"Thank God!"
- 00:10:42Clive had gone out fully dressed with his overcoat
- 00:10:45and a copy of "The Times" under his arm, hailed a cab,
- 00:10:49but couldn't remember where he lived.
- 00:10:51He wanted to go home
- 00:10:52and he couldn't remember where he lived.
- 00:10:54And the cab driver had dropped him
- 00:10:56at West Hampton Police Station
- 00:10:58and the police had traced him by his Barclaycard.
- 00:11:01So, we got there and we took him home
- 00:11:05and Clive went to walk past the gate
- 00:11:07and I stopped him and I said, "No, it's here."
- 00:11:09And he said, "Oh, is this where we live?"
- 00:11:12And I said, "Yes."
- 00:11:13And he didn't recognize the building.
- 00:11:15(suspenseful music)
- 00:11:18- [Interviewer] Two doctors made home visits
- 00:11:19and concluded that Clive was suffering from a severe bout
- 00:11:22of flu that was doing the rounds in North London.
- 00:11:28- But the Friday morning he wasn't answering me,
- 00:11:31and I picked up one of his arms and it was floppy.
- 00:11:34So, I rang the doctor again.
- 00:11:36I said, "He's gone floppy!
- 00:11:38He's gone floppy, get here now!"
- 00:11:41And the doctor came, took one look at Clive and dialed 999.
- 00:11:47Went out of the front door, walked down the stairs,
- 00:11:50and as he turned the landing he said,
- 00:11:52"This is the strangest case I've ever seen."
- 00:11:56(siren blaring)
- 00:12:00We got to the hospital,
- 00:12:01and I just remember going through these clear plastic
- 00:12:04rubber doors, they were like a valve.
- 00:12:08And as those doors flapped shut behind us,
- 00:12:11it was just like our life as we knew it was over.
- 00:12:17(tense music) (machine beeping)
- 00:12:22- [Interviewer] Once Clive was inside St. Mary's Hospital,
- 00:12:24the doctors fought to hold his fever
- 00:12:27and desperately conducted tests.
- 00:12:29They realized that Clive's brain was being attacked
- 00:12:31by the herpes simplex or cold sore virus.
- 00:12:38- Occasionally this virus crosses the blood-brain barrier
- 00:12:42and gets into the brain.
- 00:12:43Nobody knows why or how, incredibly rare.
- 00:12:48It's a one in a million chance that it's gonna happen.
- 00:12:51And it caused an inflammation of the brain
- 00:12:54which was called encephalitis.
- 00:12:58- From what the doctors said
- 00:13:02about how bad the temperature had been
- 00:13:06and how ill he'd been,
- 00:13:10I was very concerned that he wasn't going to live.
- 00:13:15I was fairly convinced that I'd come to see my dad die.
- 00:13:25(sighs) And then he didn't.
- 00:13:29(somber music)
- 00:13:30- [Interviewer] Clive was given a new drug called acyclovir.
- 00:13:33It saved his life but came too late to prevent brain damage.
- 00:13:38The virus had destroyed Clive's hippocampus,
- 00:13:40an area of the brain crucial for memory and learning,
- 00:13:44leaving him with dense amnesia.
- 00:13:48(somber music)
- 00:13:54- [Clive] How many years have I been ill?
- 00:13:56- [Interviewer] About 20.
- 00:13:58- About 20.
- 00:13:59Can you imagine what it's like
- 00:14:00to have one night 20 years long with no dream?
- 00:14:04That's what it's been like. Just like death.
- 00:14:08No difference between day and night, no thoughts at all.
- 00:14:13In that sense it's been totally painless,
- 00:14:17which is not something which is very desirable,
- 00:14:19really, is it?
- 00:14:21'Cause it's precisely like death.
- 00:14:24If you have no senses of pain,
- 00:14:26you have no sense of any kind working either.
- 00:14:30I don't remember sitting down on this chair,
- 00:14:31for example, the settee as it is.
- 00:14:33That was unknown to me.
- 00:14:35I've never seen a human being since I've been,
- 00:14:37that's the first photograph I've seen of anybody.
- 00:14:40- [Interviewer] And who is that photograph?
- 00:14:41- It's one of my sons.
- 00:14:42I can't remember his name.
- 00:14:44It's gone now.
- 00:14:46Last time I knew him he was still at school.
- 00:14:49That's how many years it's been.
- 00:14:51- A few years before he would have died from it.
- 00:14:54And a few years later they might have spotted it quicker
- 00:14:57or maybe a different doctor might have
- 00:14:58spotted it quicker or whatever.
- 00:15:00So, it was just on the cusp of that change.
- 00:15:04And yeah, he's suffered for that, I think.
- 00:15:08- In my own mind it was the question of
- 00:15:10is it right that he's been ill for so many days
- 00:15:14and how much damage has been done to his brain in that time?
- 00:15:18And whether it was the right thing or the wrong thing
- 00:15:22that he was treated and everybody fought for him
- 00:15:26as much as they did.
- 00:15:27(somber music)
- 00:15:28- [Interviewer] Clive remained at St. Mary's Paddington
- 00:15:31for seven years.
- 00:15:32There was nowhere else suitable for him to go.
- 00:15:35His mood swung from euphoria to sadness within weeks
- 00:15:39and confusion and despair set in.
- 00:15:43- He was in severe shock,
- 00:15:44so he was just crying all the time.
- 00:15:45You'd come in and you'd say, "Oh hi, I'm your son."
- 00:15:48"You're my son. I don't recognize you!"
- 00:15:50And then he'd be crying again
- 00:15:51and you're just stuck in that loop for months.
- 00:15:55- I said, "Clive, can you tell me why you're crying?"
- 00:15:59And he said, "No."
- 00:16:01And I handed him a little notepad and a pen
- 00:16:04and I said, "Can you write it?"
- 00:16:07I said, "Just write quickly why are you crying."
- 00:16:10And he wrote, "I am completely incapable of thinking."
- 00:16:20- (crying) It's all I've gotta do.
- 00:16:25(answering machine beeps)
- 00:16:26Hello, darling, it's Clive here.
- 00:16:27I don't care about anybody else in the world.
- 00:16:29Just you. Please come.
- 00:16:31I love you. Bye-bye, darling.
- 00:16:36(answering machine beeps)
- 00:16:37- [Interviewer] These messages were recorded
- 00:16:39on Deborah's answer phone minutes after she'd left him.
- 00:16:42- [Clive] Anyone else but you, darling.
- 00:16:44Can you come and see me, please?
- 00:16:46I've no clue what's happened.
- 00:16:47I just wanna talk to you.
- 00:16:48- [Interviewer] Deborah visited Clive daily
- 00:16:49but he couldn't remember her being there.
- 00:16:52- I don't care how late it is.
- 00:16:54Come to me at midnight or one o'clock in the morning,
- 00:16:56I don't mind.
- 00:16:57I just love you and I want you to come
- 00:16:58as soon as you can, will you, darling?
- 00:17:01Take care. I love you.
- 00:17:01I haven't seen you yet and I want to.
- 00:17:03Please come, darling. Bye-bye.
- 00:17:07(answering machine beeps)
- 00:17:10I've let myself in.
- 00:17:20The first time I've seen a human being.
- 00:17:26- Every moment for Clive is the first moment
- 00:17:29because the amnesia is rubbing everything out
- 00:17:33immediately after it happens.
- 00:17:35Not only does he not remember anything that's happened
- 00:17:38to him since he was ill, he doesn't remember anything
- 00:17:42that's ever happened to him in the whole of his life.
- 00:17:46He knows about things.
- 00:17:48He knows that he worked for the BBC,
- 00:17:51but he does not have any event in his mind
- 00:17:56that he can bring to his mind's eye.
- 00:17:58He knows that we are married.
- 00:18:01He does not remember the wedding.
- 00:18:08- [Interviewer] Where's your diary, Mr. Wearing?
- 00:18:10- No idea. Never seen it.
- 00:18:15It says, "7:16 a.m., first act."
- 00:18:16Well, I don't remember that at all.
- 00:18:18It was only a dream.
- 00:18:36First diary entry I've made consciously.
- 00:18:39- [Interviewer] Clive keeps a diary every day
- 00:18:42and has done for 20 years in an effort
- 00:18:44to make sense of his life.
- 00:18:46He writes multiple entries
- 00:18:47recording his last conscious moment.
- 00:18:52- He would look at his watch to see what time
- 00:18:55was this momentous event occurring of first consciousness.
- 00:19:00And so he would write down "10:06, awake first time."
- 00:19:05And then have the same sensation and put,
- 00:19:08"10:07, awake. First time truly awake.
- 00:19:12First time. Ignore the last entry.
- 00:19:16Now I'm awake.
- 00:19:17This is the first real awakeness."
- 00:19:19And so the diaries are line by line
- 00:19:23a succession of astonished awakenings.
- 00:19:30That's 1990 when he'd been suffering amnesia
- 00:19:35for just five years.
- 00:19:38And this is the effect on him seven years on.
- 00:19:42But you can see that he's by no means
- 00:19:46resolved his anguish, by no means.
- 00:19:50He writes the time now in a big hand,
- 00:19:54and a tick, a tick to say, "Yes, that's authentic.
- 00:19:58I wrote that. It's authentic.
- 00:20:00That's definitely me awake."
- 00:20:01He has to then cross through the previous ticks
- 00:20:05and do a new tick with a circle round it
- 00:20:07to say this is the real one,
- 00:20:09and that wasn't the real one.
- 00:20:10The next time he comes back, and so on.
- 00:20:12So, there's a constant desperate series
- 00:20:15of scrubbing out all the previous entries
- 00:20:18and saying, "Now I'm awake!
- 00:20:20Now I'm awake!"
- 00:20:22And the pencil just becomes blurred and it goes on.
- 00:20:26And I mean, it's so thick, the pencil,
- 00:20:27it's almost as if he's using the pencil to dig himself
- 00:20:32back into time to try to fix himself
- 00:20:35in a continuum to have more than one moment at a time,
- 00:20:39but he never can.
- 00:20:42"People's interest in the diary of rubbish."
- 00:20:44What does that mean?
- 00:20:45- I have no idea.
- 00:20:46- Did you write that?
- 00:20:47- I have no conscious knowledge of it at all, no.
- 00:20:50You're showing it to me now for the first time.
- 00:20:51- Is it your handwriting?
- 00:20:52- Yes, it is, but I know nothing about it at all.
- 00:20:54- So how do you think it got there?
- 00:20:56- Found it?
- 00:20:57I presume the doctors don't know.
- 00:20:58- [Deborah] But you must have-
- 00:20:59- [Clive] No, I haven't!
- 00:21:00Haven't seen the book at all till now.
- 00:21:01- No, all I'm saying, darling- - No, that's mean.
- 00:21:02That means I haven't seen it.
- 00:21:03I have no knowledge of it at all.
- 00:21:06That's all.
- 00:21:07There's no knowledge of that book at all.
- 00:21:08It's entirely new to me.
- 00:21:10- Who would put that apart from you?
- 00:21:11- I don't know.
- 00:21:13Oh, for heaven's sake, use your intelligence.
- 00:21:14For heaven's sake.
- 00:21:15I haven't (indistinct) read the bloody thing.
- 00:21:16- I'm sorry, darling.
- 00:21:17- Well use your intelligence.
- 00:21:18- I'm sorry.
- 00:21:19(somber music)
- 00:21:26- [Interviewer] The doctors don't know
- 00:21:27why Clive's aggressive outbursts have gradually stopped.
- 00:21:32Have you written in your diary today?
- 00:21:34- I'm sorry?
- 00:21:35- [Interviewer] Have you written in your diary today?
- 00:21:36- I've never seen a diary since I've been ill.
- 00:21:38I don't know. Had no idea it was there.
- 00:21:41It's now noon.
- 00:21:45That's at least an hour out of date,
- 00:21:46an hour and three minutes out of date.
- 00:21:50(somber music)
- 00:22:03There. First time I've seen my writing.
- 00:22:07First time I've seen my room,
- 00:22:08first time I've seen human beings.
- 00:22:14I've never had a dream or a thought.
- 00:22:15Day and night are the same.
- 00:22:17No thoughts of any kind.
- 00:22:24It says, "You're here."
- 00:22:27Is that you? (chuckles)
- 00:22:30"You're here," it says.
- 00:22:31Coffee drinking at three minutes past 10.
- 00:22:34That was unknown to me.
- 00:22:35I've never seen anyone except for you three people,
- 00:22:38two men, and one lady.
- 00:22:39(somber music)
- 00:22:47- [Interviewer] Clive's condition was hard
- 00:22:49for Deborah to bear.
- 00:22:52- You asked me when did I decide to divorce him
- 00:22:55and when did I decide to leave?
- 00:22:58It wasn't really a decision.
- 00:23:00It was an imperative.
- 00:23:02There was no way any human being could continue in that way.
- 00:23:08We had the same dialogue in a loop tape, repeated verbatim
- 00:23:12with the same inflection, the same tone of voice,
- 00:23:15the same expression on the face for, well,
- 00:23:21the whole nine years until I left.
- 00:23:23And we were still having that conversation
- 00:23:25as I was backing out of the room.
- 00:23:30(bright music)
- 00:23:32- [Interviewer] Clive became ill and hospitalized
- 00:23:34only 18 months after marrying Deborah.
- 00:23:37Three years after the virus attacked his brain,
- 00:23:40the strain on their lives was beginning to show.
- 00:23:44- It's like being a wife and widow simultaneously.
- 00:23:49I lost Clive, or most of Clive, three years ago
- 00:23:54because without consciousness, he's in many senses dead.
- 00:24:00- [Interviewer] To ease her pain,
- 00:24:01Deborah campaigned for seven years to find Clive
- 00:24:04a secure and permanent home
- 00:24:06with around the clock care that he needed.
- 00:24:09In 1992, he was finally moved
- 00:24:11to a new specialist brain unit outside London.
- 00:24:16Deborah's mission was accomplished,
- 00:24:18but she had exhausted herself,
- 00:24:20and Clive was increasingly having fits in her presence.
- 00:24:24(bright music)
- 00:24:25With no hope of living together again,
- 00:24:27Deborah divorced Clive and flew to America.
- 00:24:33- I was in my mid-30s.
- 00:24:34I wanted kids.
- 00:24:36I didn't want to be on my own all the time.
- 00:24:37It was very lonely.
- 00:24:38And I thought maybe having a relationship with somebody else
- 00:24:41and having kids would help to heal the pain.
- 00:24:45(bright music) (horns honking)
- 00:24:47I rang him up to say, "Hello, darling, I've arrived."
- 00:24:51Although, of course, he didn't know I'd left
- 00:24:52'cause he didn't know I'd ever been there.
- 00:24:53And it didn't really make any difference where I was.
- 00:24:56It didn't matter whether I was in London
- 00:24:57or New York or Timbuktu.
- 00:25:02I tended to fall for just completely impossible people
- 00:25:06who were all artists of some kind.
- 00:25:08And as soon as I became close to anybody
- 00:25:13and had conversations with them,
- 00:25:15you know, the relationship just dissolved
- 00:25:18because they weren't Clive, basically. (chuckles)
- 00:25:26I was looking for Clive, I guess.
- 00:25:31- [Interviewer] Did he ever ask you
- 00:25:32when you were coming home?
- 00:25:33- [Deborah] No.
- 00:25:35- [Interviewer] Did he ever ask you what you were doing?
- 00:25:37- No. He showed no curiosity.
- 00:25:40He just wanted to let me know that he was awake.
- 00:25:45He'd say, "When are you coming?"
- 00:25:49And I'd say, "As soon as I can."
- 00:25:52And then he'd say, "Oh, please come at the speed of light.
- 00:25:56Come at the speed of light.
- 00:25:58Come by helicopter!"
- 00:26:00(somber music)
- 00:26:05- [Interviewer] In 1996, Deborah had to make a choice
- 00:26:08whether to remain in America
- 00:26:10and apply for permanent residency and a green card.
- 00:26:16She returned to the UK, drawn back to Clive.
- 00:26:20She settled in Nottingham,
- 00:26:22working for the brain injury charity Headway.
- 00:26:25Deborah had come full circle.
- 00:26:30- And I came back still not knowing how to live.
- 00:26:33And still with a huge emptiness,
- 00:26:35a great sucking emptiness inside
- 00:26:37that could never be filled.
- 00:26:39Still with a sense of needing to go home,
- 00:26:42but where's home?
- 00:26:44'Cause home was where he was but I couldn't be with him.
- 00:26:47(bright music)
- 00:26:51- [Clive] I knew you were coming.
- 00:26:55- I was just going around in ever decreasing circles,
- 00:26:58but it was the same.
- 00:26:59It was just more of the same.
- 00:27:01I'd reached really the end of my tether,
- 00:27:04and I rang a friend and I asked her to pray for me.
- 00:27:08She was the only Christian I knew.
- 00:27:10And as she was whispering away to God,
- 00:27:12and I just felt this extraordinary power coming into me
- 00:27:20and I knew that God was in my room.
- 00:27:24I just had this incredible sense
- 00:27:28that I was really, really loved.
- 00:27:32I mean, so loved.
- 00:27:33And that emptiness that I had been trying to fill
- 00:27:36all those years with relationships, with food, with alcohol,
- 00:27:43I was filled.
- 00:27:45That emptiness was gone.
- 00:27:47(dramatic music)
- 00:27:58And the steps.
- 00:28:02This is St Etheldreda's, St Etheldreda's eating place.
- 00:28:09- [Interviewer] Clive is visiting St Etheldreda's Church
- 00:28:12in London for the first time
- 00:28:14since he recorded a concert there in 1982.
- 00:28:18(dramatic music)
- 00:28:22- It's amazing to have the acoustic of the churches.
- 00:28:24It's quite unlike the sort of concert hall.
- 00:28:26- [Deborah] Yeah, yes.
- 00:28:27- There's lots of echos and long reverberation.
- 00:28:30It's very special in that way.
- 00:28:31- [Deborah] Listen. See how quiet it is.
- 00:28:34- I can hear some music in the distance.
- 00:28:37- I remember last time we were here
- 00:28:40you were conducting the Lassus Requiem.
- 00:28:43- Was I? Oh.
- 00:28:44- And it was for the International Lassus Festival
- 00:28:49that you put on, and you came in here,
- 00:28:52and none of the pews were here,
- 00:28:54and you used the whole building-
- 00:28:56- For the acoustics.
- 00:28:59- It was far from a concert.
- 00:29:00It was actually a celebration of the mass
- 00:29:06as if Lassus had just died.
- 00:29:09It was extraordinary.
- 00:29:10And it was so moving that there were people here
- 00:29:14who were crying.
- 00:29:15(Clive whimpers)
- 00:29:16And it was broadcast live to five countries
- 00:29:21and you were directing it.
- 00:29:23And it was so moving.
- 00:29:24It was so moving that everyone was in tears.
- 00:29:33That's how good a musical director you were.
- 00:29:36It was just live.
- 00:29:38And you gave the audience,
- 00:29:40whether they were sitting at home listening to the radio
- 00:29:43or whether they were walking round here in the dark
- 00:29:45with candlelight flickering, you gave them an experience
- 00:29:49of something deep and profound and spiritual.
- 00:29:53And they went away after your concerts
- 00:29:54and they were never the same again.
- 00:29:57You did it, darling.
- 00:29:59- I'm amazed that you would say that.
- 00:30:00I can't think that.
- 00:30:02- Oh, you were marvelous.
- 00:30:03- No.
- 00:30:04- You still are marvelous.
- 00:30:06(choir vocalizing)
- 00:30:30(soft suspenseful music)
- 00:30:35- Clever car driver. Double CD.
- 00:30:37Fine Wearing keep.
- 00:30:39Extremely pleasant the garage that came from.
- 00:30:41- [Interviewer] Clive makes phrases out of the letters
- 00:30:43on car number plates as they flash past.
- 00:30:47- The great king of kings.
- 00:30:48His two-door carriage was a rare sight.
- 00:30:52- [Deborah] Thank you, my love.
- 00:30:53- [Clive] Ladies first forever.
- 00:30:54- [Deborah] Thank you.
- 00:30:56- Cheers, cheers. - Cheers.
- 00:31:00(both laugh)
- 00:31:01Guess what my job is.
- 00:31:03- [Clive] Head of United Nations.
- 00:31:04- No. - No?
- 00:31:05Head of the British Empire?
- 00:31:06- Mm-mm. - No?
- 00:31:07- Guess.
- 00:31:08- PR?
- 00:31:09- PR!
- 00:31:10(Clive laughs)
- 00:31:11Wow, that's amazing.
- 00:31:14Yeah, I do.
- 00:31:16That's very clever.
- 00:31:20Well done, darling.
- 00:31:22Can I give you a kiss?
- 00:31:24- Thank you. (Deborah laughs)
- 00:31:28So that's what it is.
- 00:31:30- You astound me sometimes.
- 00:31:32You take my breath away.
- 00:31:35I love you. - I'd rather you didn't
- 00:31:36lose your breath.
- 00:31:36- [Deborah] Hmm?
- 00:31:37- You're not to stop breathing, though.
- 00:31:38- No, I won't.
- 00:31:40(indistinct)
- 00:31:43Do you know what I do for a living?
- 00:31:45- You earn money.
- 00:31:46- Yeah, but what do you think my job is?
- 00:31:48- Running the United Nations.
- 00:31:49- No really, what do you think it is?
- 00:31:51- I don't know, really. - Guess.
- 00:31:52- Head of United, no, British Empire.
- 00:31:54- Guess.
- 00:31:56What can you see me doing?
- 00:32:00- Being a film star.
- 00:32:02- No, really.
- 00:32:02- (chuckles) I don't know.
- 00:32:04- PR, public relations. - Oh, I see.
- 00:32:06Well done.
- 00:32:09That's an exciting life, though, isn't it?
- 00:32:11No two days the same.
- 00:32:12They're always different, aren't they?
- 00:32:13(gentle music)
- 00:32:21- [Interviewer] Deborah renewed her marriage vows
- 00:32:22with Clive three years ago,
- 00:32:24although they'll always have to live apart.
- 00:32:28- [Deborah] What does this house mean to you?
- 00:32:31- The opposite of walking in the open air. (chuckles)
- 00:32:35The necessity for life, a house.
- 00:32:36- [Deborah] This house.
- 00:32:37What is this house? - Never seen it before.
- 00:32:42- [Interviewer] What does this place mean to you?
- 00:32:43- I don't know. It doesn't mean anything.
- 00:32:44I've never seen it before.
- 00:32:47(bird squawks)
- 00:32:48Hello. (chuckles)
- 00:32:50How low is Heaven-o if hello is very Hell-o? (snorts)
- 00:32:54- It's not familiar then?
- 00:32:56The house? - I've never seen it before.
- 00:32:57I've never seen a human being since I've been ill.
- 00:32:59- Where do you think it is?
- 00:33:00- I have no idea.
- 00:33:01- Guess. - Don't know what year it is.
- 00:33:02- Guess where it might be. - No idea.
- 00:33:03It could be anywhere from Scotland to Cornwall.
- 00:33:06Do you think you've ever been here before?
- 00:33:09- No.
- 00:33:14There's my initials backwards, WDC.
- 00:33:17- Should we go in?
- 00:33:18- Yes, please.
- 00:33:19- What do you think we'll find when we get in?
- 00:33:20- Alcohol.
- 00:33:22- Let's hope, eh?
- 00:33:23(Clive laughs)
- 00:33:24- Champagne I want when we get in.
- 00:33:27- [Interviewer] What do you think life's been like
- 00:33:28for your father?
- 00:33:29- Hell. I can't imagine anything worse.
- 00:33:34Must be really frightening to be constantly waking up
- 00:33:39to something that you don't recognize.
- 00:33:43Every seven seconds or however long
- 00:33:48he can remember anything for,
- 00:33:50to sort of turn round and, where am I?
- 00:33:53And you do it again and you don't know where you are.
- 00:33:56I can't imagine anything more frightening.
- 00:33:58Must be like a nightmare.
- 00:34:01Really must.
- 00:34:14(upbeat music)
- 00:34:27- [Interviewer] Deborah is planning
- 00:34:28a momentous trip for Clive.
- 00:34:32- [Deborah] Where would you like to go?
- 00:34:34- Best pub in the country.
- 00:34:35- If you could go anywhere, where would you like to go?
- 00:34:36- I have no idea. No idea.
- 00:34:38- Well, I'm gonna take you home.
- 00:34:40- Oh, I see. That's marvelous, yes. (laughs)
- 00:34:42- Do you know where home is?
- 00:34:43- No. - Guess.
- 00:34:45- Yesterday.
- 00:34:46- Home is yesterday.
- 00:34:48- Yesterday which is not today.
- 00:34:50- That's not a bad answer, actually.
- 00:34:52Home is yesterday.
- 00:34:54That's true.
- 00:34:55- Yesterday never stops.
- 00:34:55- And home is also next Tuesday.
- 00:34:57- Oh, I see. (chuckles)
- 00:34:59- I live in Reading.
- 00:35:00- Oh, I see.
- 00:35:02- You ever been to Reading? - It looks like reading
- 00:35:03the way it's spelled, doesn't it?
- 00:35:04- Do you think you've ever been to Reading?
- 00:35:06- Yes, I have been.
- 00:35:07- Have you? - Yes.
- 00:35:08I've been to almost every city there is
- 00:35:09and every little town. - I suppose you could have
- 00:35:10gone when Howard was studying there.
- 00:35:12- Yeah.
- 00:35:13- Yeah, I didn't know you'd ever been there.
- 00:35:15- Yes, it's very familiar. - You've never
- 00:35:15mentioned Reading.
- 00:35:16- No, it's not very interesting
- 00:35:18because I have no memory of going there.
- 00:35:19- Yeah, not a very interesting place.
- 00:35:21- No. - No.
- 00:35:27Can you name a town in Berkshire?
- 00:35:28- No, I can't. I can't remember-
- 00:35:30- Do you know where I live?
- 00:35:31- No.
- 00:35:33- Guess.
- 00:35:34- I have no idea.
- 00:35:35- Begins with R.
- 00:35:36- Have no idea.
- 00:35:37- Reading.
- 00:35:38- Oh really? - Yeah.
- 00:35:39- It's spelled wrong. It should be reading.
- 00:35:40(upbeat music)
- 00:35:43What's that word?
- 00:35:44- [Interviewer] Clive is going home
- 00:35:46for the first time in 13 years.
- 00:35:49- Do you remember the car your parents drove?
- 00:35:51Your father drove?
- 00:35:52- No, I can't remember. It's all gone.
- 00:35:54- You remember the number plate.
- 00:35:55- UN941.
- 00:35:56- UN941.
- 00:35:58- Yeah. - You do.
- 00:35:59- [Clive] But I can't remember the car.
- 00:36:00- Do you remember the phone number
- 00:36:02when you were a little boy?
- 00:36:03- 3164.
- 00:36:04(upbeat music)
- 00:36:07- [Interviewer] Remarkably, Clive can still recall details
- 00:36:10from his childhood, numbers embedded in his memory
- 00:36:13before he became ill.
- 00:36:18There's another guest expected for lunch,
- 00:36:21Clive's youngest son, Edmund,
- 00:36:23who has not seen his father for seven years.
- 00:36:27- Things I used to do with my father
- 00:36:29always revolved around his work.
- 00:36:32We'd be either going to places such as the British Museum
- 00:36:36for his research, or we'd be going to concert venues
- 00:36:40or recording venues.
- 00:36:42We would often end up in churches.
- 00:36:44And he could walk into a church or a cathedral anywhere
- 00:36:47in Europe and read it like a book.
- 00:36:50He had a vast amount of knowledge,
- 00:36:52and that's just been wiped out.
- 00:36:55It's been a difficult time
- 00:36:59(bell rings)
- 00:37:02- [Interviewer] Seconds before Edmund's arrival,
- 00:37:04Deborah has primed Clive to expect him.
- 00:37:07- Ah, look who it is, darling.
- 00:37:11Hello.
- 00:37:13- Oh, well done. - Ah!
- 00:37:15- Hi, Dad. How are you? - Back home.
- 00:37:17- Yes, very pleased to see a human being for the first time.
- 00:37:19- Ah.
- 00:37:20- Never seen anyone since I've been ill.
- 00:37:21- I brought some flowers for that lovely wife of yours.
- 00:37:23- She's gorgeous, isn't she?
- 00:37:25- Oh, thank you. (Clive laughs)
- 00:37:26- There you are. - Thank you very much.
- 00:37:27Thank you.
- 00:37:28- I thought you'd like that. (kisses smacking)
- 00:37:29- Thank you.
- 00:37:30- It's not quite red, white, and blue, though,
- 00:37:30the color, is it?
- 00:37:31- Aren't they lovely?
- 00:37:32- [Edmund] They're more pinky.
- 00:37:33- Most countries don't have pubs.
- 00:37:35What a strange institution.
- 00:37:36- [Interviewer] What does normality feel like the you now?
- 00:37:39- [Clive] Certainly, at the end of a day's work-
- 00:37:40- Great luxury and something that, you know,
- 00:37:44to be really valued and appreciated.
- 00:37:47It's very precious.
- 00:37:48We haven't had a family meal for 20 years.
- 00:37:58- [Interviewer] Deborah, what will this day mean to Clive?
- 00:38:01- Nothing.
- 00:38:03Nothing in his conscious memory.
- 00:38:05I mean, even while he's here, he doesn't know we're here.
- 00:38:09And when he's in the car, he won't know we've been here.
- 00:38:11- [Interviewer] And he won't remember anything of it?
- 00:38:13- Nope.
- 00:38:14He doesn't remember anything that's ever happened
- 00:38:15in the last 20 years, ever.
- 00:38:18- [Interviewer] What do you say to Clive
- 00:38:19when he gets confused and disorientated?
- 00:38:22How do you deal with that?
- 00:38:23- Well, he's disoriented all the time, but it doesn't matter
- 00:38:28because we don't need to be in time.
- 00:38:30We don't need to be in any particular place.
- 00:38:34We're on another plane, Clive and I.
- 00:38:37We're in a world where there is no time.
- 00:38:42- [Interviewer] After four hours,
- 00:38:43Deborah has to take Clive back to the brain injury unit.
- 00:38:47Has it gone well?
- 00:38:49(Clive and Edmund chattering)
- 00:38:53- I don't really want to answer that, thank you.
- 00:38:55(Clive and Edmund chattering)
- 00:38:59- [Clive] Why is giant pronounced the way it is?
- 00:39:00It should be gee-unt.
- 00:39:04- Sorry.
- 00:39:05That was very rude.
- 00:39:07That was very rude.
- 00:39:10Ask me that again.
- 00:39:13- [Interviewer] I was just wondering how the day had been.
- 00:39:19(Deborah sighs)
- 00:39:22- Well, it's just so sad that it's not,
- 00:39:25that's not our reality, and it's just so sad.
- 00:39:30- Thank you.
- 00:39:31Do you want this door shut?
- 00:39:32- Yes, please. - All right.
- 00:39:39- [Interviewer] And why have you
- 00:39:40stayed away for seven years?
- 00:39:42- It's too painful.
- 00:39:46- [Interviewer] Was it easier to stay away?
- 00:39:47- Oh yeah. Yeah, it was the easy way out.
- 00:39:53There didn't seem any point either
- 00:39:54'cause he didn't remember.
- 00:39:56He'd write it in his diary, but he'd turn over the page
- 00:39:59and start writing the next day.
- 00:40:02- [Interviewer] Did he know who you were?
- 00:40:05- More or less.
- 00:40:06Sometimes he'd need a bit of prompting.
- 00:40:09He's got a quick mind.
- 00:40:11If friends came up that he didn't recognize
- 00:40:14and he understood that he was supposed
- 00:40:16to recognize these people,
- 00:40:18then he would greet them like long lost friends.
- 00:40:21And he'd work on that until somebody
- 00:40:25told him what he needed to know.
- 00:40:27So, he was always a difficult man to fool. (chuckles)
- 00:40:31And those were the things, ya know, that I was always
- 00:40:33pleased to see because I knew that his mind
- 00:40:35was working overtime and I knew that that was him.
- 00:40:40Other than that, he's just a shadow.
- 00:40:43(dramatic piano music)
- 00:40:52- [Interviewer] Today, Clive's sister Adele
- 00:40:54has come to see him.
- 00:41:01- And we used to take his children to see him,
- 00:41:03but he used to get very aggressive.
- 00:41:05He was very angry.
- 00:41:06You know, there was one occasion
- 00:41:07when I went to see him on my own
- 00:41:09and when I said who I was, he attacked me almost.
- 00:41:15You know, grabbed hold of me very aggressively.
- 00:41:18And the staff came in and sort of calmed it down.
- 00:41:21But he remembered me when I was younger.
- 00:41:23He just said, "No, you're too old."
- 00:41:26- That's all four of us, is it?
- 00:41:28- That's what Adele looked like.
- 00:41:30How old do you think you all were then?
- 00:41:32- I looked about 10 or 11.
- 00:41:34- [Adele] I think I'm about four there, actually.
- 00:41:36- [Deborah] About four.
- 00:41:37- Yeah, so you're about 9 or 10 there.
- 00:41:39- And doesn't Jeff look enormous compared with us?
- 00:41:41- [Deborah] And he went off to sea
- 00:41:42when he was 15, didn't he?
- 00:41:44- [Adele] Yes, he went to the Merchant Navy.
- 00:41:46- [Clive] Yeah, but the ships travel really quite slowly
- 00:41:48compared with the aircraft, don't they?
- 00:41:49- Oh, very slowly, yes.
- 00:41:51I used to go and visit him.
- 00:41:53I found it just so difficult.
- 00:41:56And not easy to talk to him at all.
- 00:41:59My husband who'd got no connection with him
- 00:42:01found it much easier.
- 00:42:02He could talk about things that were totally irrelevant
- 00:42:05and quite happily carry on a conversation with him.
- 00:42:08But I have always found that
- 00:42:10an extremely difficult thing to do.
- 00:42:12- [Clive] Oh, a shame.
- 00:42:14- [Adele] It's been lovely to see you.
- 00:42:16- (indistinct) see me.
- 00:42:18- See you. All right.
- 00:42:20- Oh, wonderful.
- 00:42:21- [Adele] Bye-bye for now.
- 00:42:24You stay there and I'll...
- 00:42:26- Will you open the door?
- 00:42:27- [Adele] I will.
- 00:42:27- Are you going? - I'm going.
- 00:42:28- [Clive] Oh, shame. (laughs)
- 00:42:30- Bye-bye.
- 00:42:31- [Clive] Back at the speed of light, please.
- 00:42:33- [Adele] I'll do my best. Bye.
- 00:42:35- Isn't she wonderful? (chuckles)
- 00:42:41- [Interviewer] Do you remember Adele sitting next to you?
- 00:42:43- No.
- 00:42:46- [Interviewer] Can you remember what she was wearing?
- 00:42:47- No. Never seen her.
- 00:42:55You're the first human beings I've seen, three of you.
- 00:42:58Two men and one lady.
- 00:42:59The first people I've seen since I've been ill.
- 00:43:02No difference in day and night.
- 00:43:04No thoughts at all. No dreams.
- 00:43:06Day and night the same. Blank.
- 00:43:10Precisely like death.
- 00:43:14- [Interviewer] Is it very hard?
- 00:43:15- No.
- 00:43:17It's exactly the same as being dead,
- 00:43:18which is not difficult, is it?
- 00:43:20Being dead is easy.
- 00:43:21You don't do anything at all.
- 00:43:24You can't do anything when you're dead.
- 00:43:29It's been the same. Exactly.
- 00:43:32- [Interviewer] Do you miss your old life?
- 00:43:34- Yes, though I've never been conscious to think that.
- 00:43:38So I've never been bored or upset.
- 00:43:40Never been anything at all.
- 00:43:42Exactly the same as death.
- 00:43:44No dreams even.
- 00:43:46Day and night the same.
- 00:43:49- [Interviewer] When you miss your old life,
- 00:43:50you say, "Yes, I miss my old life."
- 00:43:52What do you miss?
- 00:43:54- The fact that I was a musician and in love.
- 00:43:59- He'll say things like, "Do you know what it's like?"
- 00:44:01And that's really dangerous 'cause,
- 00:44:03I actually did, I said yes once
- 00:44:05'cause I was just saying yes (chuckles).
- 00:44:08That was disastrous.
- 00:44:09I've never said that again since.
- 00:44:12- [Interviewer] Why?
- 00:44:13- Because he says, "You don't know what it's like.
- 00:44:14How do you know?"
- 00:44:15And of course, he's right, isn't he? (chuckles)
- 00:44:18So, there's no way you're gonna know what it's like.
- 00:44:21- [Interviewer] He's still got some fight in him.
- 00:44:22- Oh yeah, yeah.
- 00:44:23But that's the thing.
- 00:44:25Probably three-quarters of his personality
- 00:44:27is still there functioning normally.
- 00:44:30He will analyze what's happening.
- 00:44:31He'll say, "Well, the doctors must be
- 00:44:32very interested in this.
- 00:44:34It's a very unusual case."
- 00:44:35He worked it all out over and over again
- 00:44:37because he doesn't really remember
- 00:44:38that he worked it out an hour ago.
- 00:44:40(leaves rustling)
- 00:44:45(bright piano music)
- 00:44:47(Clive blowing out air)
- 00:44:49- [Deborah] (laughs) Woohoo!
- 00:44:57- Deborah's done more for Dad than any other single person.
- 00:45:02I very much doubt that I could have done that for him.
- 00:45:07And that's hard.
- 00:45:10That's very hard.
- 00:45:12I think I'd have given up.
- 00:45:15- Do you see that? - Yes.
- 00:45:16- [Interviewer] When did you last see your father?
- 00:45:18- [Deborah] Oh, it's revolting.
- 00:45:18- I wouldn't like to say when it was
- 00:45:19'cause I really can't remember.
- 00:45:21It's too hard.
- 00:45:25I wanted him to walk me down the aisle
- 00:45:27when I got married and he couldn't.
- 00:45:32I wanted him to know that I'd had his grandchildren
- 00:45:37and he couldn't.
- 00:45:40So he's a lovely person.
- 00:45:48He's Clive now.
- 00:45:52Dad's gone.
- 00:45:53(electric razor buzzing)
- 00:46:10- Considering he's still one of the most amnesic people
- 00:46:13in the world, he's pretty peaceful,
- 00:46:16considering he doesn't know where he is
- 00:46:19or what century it is or what time he got up that morning
- 00:46:25or that he's in a place where he lives.
- 00:46:29Considering all of that,
- 00:46:32his state of mind is extraordinarily calm,
- 00:46:35happy, content, and very much himself.
- 00:46:41He's himself.
- 00:46:44- [Interviewer] If you could do anything now,
- 00:46:47if you had free choice, what would you do next?
- 00:46:50- Oh, a gin and tonic, I think. (chuckles)
- 00:46:55With a cigarette.
- 00:46:58Then, of course, waiting for time to elude and disappear
- 00:47:02and her arrival.
- 00:47:04(bright piano music)
- 00:47:26(gentle music)
- 00:47:27- [Man] There are 20-some muscles on each side of the face.
- 00:47:32So many, many possibilities of expression in the smile.
- 00:47:38Some people say you smile with your eyes and this is true
- 00:47:42because with these minute changes and the wrinkles,
- 00:47:46maybe have a soft smile or a big laugh.
- 00:47:49So we use the face all the time.
- 00:47:55(man speaking in foreign language)
- Clive Wearing
- amnesia
- memory loss
- music
- Deborah Wearing
- brain injury
- love
- family
- recognition
- daily life